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Author Archives: Ianthe Dempsey

Comments for April 17 IACC Meeting

These comments are available as a PDF here. Thank you for the opportunity to submit written comments. The Autistic Self Advocacy Network, in light of the recent 2019 reintroduction of the Autism CARES Act1Autism CARES Act of 2019, H.R. 1058, S. 427, 116th Cong. (2019). and its annual commemoration...

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ASAN – Who We Are and What We Do

The Autistic Self Advocacy Network is a 501(c)(3) nonprofit organization run by and for autistic people. ASAN was created to serve as a national grassroots disability rights organization for the autistic community, advocating for systems change and ensuring that the voices of autistic people are heard in policy debates...

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Find out how YOU can #StopTheShock!

On April 24, 2014, the The Food and Drug Administration (FDA), the government organization in the United States that decides what kinds of medical treatments can be used on people, held a hearing that led them to conclude that there is no way to use the GED without significant...

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White House Fails Autistic Community, Again

The Autistic Self Advocacy Network is disappointed but not surprised by the White House’s continued participation in Autism Speaks’ “Light It Up Blue” campaign. If the Trump administration truly wanted to support autistic people, they would show us through their actions that we are accepted, rather than taking the...

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Coalition Statement On Updated HCBS Guidance

This statement is available as a PDF here. Today, the Center for Medicare and Medicaid Services (CMS) issued guidance that reaffirms its commitment to implementing the Home and Community Based Settings (HCBS) Rule, including important requirements around the “heightened scrutiny” process for settings that have institutional qualities. First issued...

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Disability Rights Statement On The Deaths At Wanaque Center for Nursing and Rehabilitation

As people with disabilities and loved ones of people with disabilities, as disability rights advocates, and as human beings, we are horrified by the deliberate neglect which led to the deaths of eleven children last fall at the Wanaque Center for Nursing and Rehabilitation, an institution for medically fragile...

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ASAN, 243 Other Orgs Urge FDA to #StopTheShock

This letter is available as a PDF here. March 6th, 2019 Alex M. Azar II Secretary U.S. Department of Health and Human Services Scott GottliebCommissionerFood and Drug Administration John Michael Mulvaney Director Office of Management and Budget Sent via electronic mail Re:  FDA proposed rule banning electrical stimulation devices...

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Congress Must Stop Scapegoating People With Mental Health Disabilities

The House has voted to pass HR 1112, a bill that would close the “Charleston Loophole”, which currently enables some people who have failed criminal background checks to purchase guns. While we would like to applaud this effort to enforce existing common-sense gun laws, an unrelated amendment introduced by...

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ASAN Letter to the House Opposing HR 1112

This letter is available as a PDF here. February 28, 2019 VOTE NO ON H.R. 1112, the Enhanced Background Checks Act of 2019 Dear Representative: On behalf of the American Civil Liberties Union, the Bazelon Center for Mental Health, and the Autistic Self Advocacy Network, we urge members of...

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