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Category Archives: Policy

A voice for all: Why I’m fighting to help Autistic students access the form of communication that works best for them.

This March, I filed a complaint with the Department of Justice on behalf of five non-speaking autistic students in Arlington, VA who use letter-boards to communicate (or, as one of these students has dubbed them, the “Arlington Five”). These students are only a few of the many non-speaking autistic...

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ASAN Statement on SSA Representative Payee Gun Database Rule

The Autistic Self Advocacy Network (ASAN) strongly opposes a rule proposed by the Social Security Administration (SSA) that would report individuals who receive Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI), who also require the services of a representative payee, to the National Instant Criminal Background Check...

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Statement on FDA Proposed Rule Banning Use of Electric Shock Devices

On April 22, 2016, the Autistic Self Advocacy Network (ASAN) issued the following statement on the proposed FDA rule to ban the use of electric shock devices such as those used at the Judge Rotenberg Center. Today, the Food and Drug Administration (FDA) released a proposed rule to ban...

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ASAN Expresses Concern over New Autism Research Funding Numbers

The Autistic Self Advocacy Network is deeply concerned by numbers released today by the Office of Autism Research Coordination (OARC) showing that autism research funding around services and adult issues has continued to drop from already low levels over the course of the last several years. Based on data from...

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ASAN Urges Confirmation of Supreme Court Nominee Merrick Garland

The Autistic Self Advocacy Network (ASAN) urges the Senate to confirm Merrick Garland, President Obama’s nominee to fill the current vacancy on the Supreme Court. This vacancy cannot be allowed to remain until the inauguration of the next president. We believe that the President’s nominee will fairly examine the...

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ASAN Joins Letter Opposing Harmful Mental Health Bill

The Autistic Self Advocacy Network has joined a letter led by the Leadership Conference on Civil and Human Rights opposing legislation that would undermine protection and advocacy organizations for people with psychosocial disabilities, erode privacy protections, and increase institutionalization and coercive interventions. Although our mental health services system is...

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ASAN, Disability Rights Ohio, and National Federation of the Blind Win Landmark Department of Labor Decision Against Sheltered Workshop

In a groundbreaking opinion issued yesterday, the U.S. Department of Labor found that a sheltered workshop in Ohio had violated federal minimum wage laws by underpaying three of its workers with disabilities, including one autistic man. The opinion followed a petition that Autistic Self Advocacy Network filed along with...

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Autistic Self Advocacy Network Joins Disability Rights Amicus Brief Opposing Physician-Assisted Suicide in New York

On Wednesday January 6, the Autistic Self Advocacy Network joined Not Dead Yet and nine other disability rights organizations in filing a friend-of-the-court brief opposing physician-assisted suicide in New York. The brief, filed in a New York appeals court, supports a lower court ruling dismissing a lawsuit that sought...

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ASAN Opposes Proposal to Link Gun Purchases to SSA Rep Payee Database

In light of the recent announcement that the Obama Administration intends to utilize the Social Security Administration’s (SSA) Representative Payee database to feed the names of people with psychiatric disabilities requesting assistance in managing their financial affairs into the National Instant Criminal Background Check system to prevent firearms purchases,...

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Segregated Farmsteads in Arizona Aren’t “Community-Based”

Yesterday, ASAN wrote a letter to Arizona’s Medicaid agency urging it not to classify segregated “farmsteads” as community-based settings. Unlike traditional farms, autism-specific farmsteads are segregated, disability-specific settings where people work for less than minimum wage, and where people have few or no opportunities to work side by side...

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