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Category Archives: Policy

ASAN Calls for Expanded Coverage of Assistive Communication Devices

The Autistic Self Advocacy Network has called on the Centers for Medicare and Medicaid Services (CMS) to recognize tablets – such as iPads – as assistive communication devices. Many autistic people use speech-generation programs on tablets to communicate. Currently, people enrolled in Medicare can only get coverage for special speech-generation...

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Action Alert: Speak Out Against Guardianship Abuse

The template below is available to download as a Word document here. We would like for all of our chapters and chapter members to email this letter about guardianship for senior citizens to Senator Susan M. Collins and Senator Claire McCaskill. It is in response to a recent New...

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Autistic Self Advocacy Network Files Amicus Brief Challenging Discriminatory Denial of Health Care

On Monday January 26, the Autistic Self Advocacy Network, Not Dead Yet, and 13 other disability rights organizations filed a second amicus brief in a case defending the rights of people with disabilities to basic medical care. Disability Rights Wisconsin filed the initial lawsuit, Disability Rights Wisconsin v. University of...

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ASAN Statement on New Jersey Assisted Suicide Bill Hearing

Despite leading disability rights organizations’ long history of opposition to legalization of assisted suicide, the New Jersey Senate Health, Human Services and Senior Citizens Committee held a hearing yesterday on the state’s proposed assisted suicide bill without inviting any representatives of the disability community as witnesses. People with disabilities,...

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ASAN Comment on California’s HCBS Transition Plan

Department of Health Care Services Long-Term Care Division, STP comments 1501 Capitol Avenue, MS 4503 PO Box 997437 Sacramento, CA 95899-7437 VIA EMAIL: STP@dhcs.ca.gov   Dear Sir or Madam: The Autistic Self Advocacy Network (ASAN) appreciates the opportunity to submit the following comments on California’s statewide home and community-based...

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Action Alert: Send Comments Now on Community Services in California

Dear friends, The federal government has announced a new rule that will make sure that Medicaid-funded home and community-based services are actually in the community. Home and community based services help people with disabilities get the supports and services they need to live, work, and stay in their own...

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ASAN Unveils Toolkit for Advocates on New Home and Community-Based Settings Rules

ASAN has published a toolkit for advocates, families and administrators on how to ensure that people with disabilities receive Medicaid-funded Home and Community-Based Services in integrated settings that offer full access to the community. Home and community-based services are an important source of support for many people with disabilities who need...

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ASAN Unveils Toolkit for Advocates on Health Care and the Transition to Adulthood

ASAN has prepared a comprehensive toolkit to empower people with disabilities, their families, and other disability advocates to help youth with disabilities manage their own health care as they transition to adulthood. As ASAN found in our 2013 report, youth with intellectual and developmental disabilities face a variety of barriers to...

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ASAN Statement Praising Department of Education’s Results Driven Accountability System

Last week, the US Department of Education announced a new accountability framework for state compliance with the Individuals with Disabilities Education Act (IDEA).  This new accountability framework, entitled Results-Driven Accountability, includes for the first time the use of independent outcome data from the National Assessment of Educational Progress (NAEP)...

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ASAN Statement on Autism CARES Act

In response to this week’s introduction of the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act of 2014 (S.2449) and the markup of H.R. 4631, the House equivalent, the Autistic Self Advocacy Network has issued the following statement: ASAN is pleased to note that both the Senate and...

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