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Category Archives: Policy

ASAN, Disability Rights Organizations Urge Changes to Combating Autism Act

On Monday, the Autistic Self Advocacy Network released a joint letter to Congress, signed by fourteen other organizations, urging changes to the Combating Autism Reauthorization Act, H.R. 4631. June 2, 2014 Dear Chairman Pitts and Ranking Member Pallone: We, the undersigned organizations committed to advancing equality of opportunity for people...

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ACTION ALERT: Call On Congress to Oppose H.R. 4631, the Combating Autism Re-Authorization Act

Tomorrow at 2 PM, the House Energy & Commerce Health Subcommittee will be taking a step to advance H.R. 4631, which would reauthorize the Combating Autism Act. The current version of the bill continues to exclude autistic people from the federal committee that oversees autism research (the Interagency Autism...

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ASAN Statement Opposing House CAA Re-authorization Legislation H.R. 4631

The Autistic Self Advocacy Network is deeply concerned by the recently introduced Combating Autism Re-authorization Act of 2014 (H.R. 4631). H.R. 4631 fails to address many of the longstanding problems in the CAA, including the lack of funding and attention to research on services and the needs of adults,...

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Our Lives, Our Health Care: Self Advocates Speaking Out

The Autistic Self Advocacy Network and Office of Developmental Primary Care are pleased to release, “Our Lives, Our Health Care: Self Advocates Speaking Out About Our Experiences with the Medical System.”...

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Tell the FDA To Ban Aversive Conditioning Devices and Stop the Judge Rotenberg Center

Dear Friends: The Food and Drug Administration (FDA) is considering an important action that would ban the use of devices that use electric shock for behavior modification. This action has the potential to close the Judge Rotenberg Center, an institution in Massachusetts which uses contingent electric shocks as a...

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ASAN Comment on Healthy Pennsylvania 1115 Demonstration Application

Approving Pennsylvania’s Application as submitted thwarts past ADA enforcement efforts and violates the law. ...

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Disability Community Joint Letter on Combating Autism Act Re-authorization

Dear Senator Menendez, Rep. Smith and Rep. Doyle, We, the undersigned organizations committed to advancing equality of opportunity for people with disabilities, write with regard to the upcoming re-authorization of the Combating Autism Act (CAA). As you consider re-authorizing CAA, we urge you to incorporate the need for substantive...

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The Case for Designating People with I/DD as MUP

There are millions of Americans with disabilities lacking adequate health care because of a lack of primary care providers who are properly trained to treat them. In 2000, Healthy People 2020 cautioned that “as a potentially underserved group, people with disabilities would be expected to experience disadvantages in health...

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Organ Transplantation and People with Disabilities: A Toolkit for State Advocates

ASAN Unveils Toolkit for Advocates on Ending Discrimination in Organ Transplantation ASAN has prepared a comprehensive toolkit to empower people with disabilities, their families, and other disability advocates to help combat disability-based discrimination in organ transplantation.  ...

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Memorandum on CAA Re-Authorization

Memorandum on CAA Re-Authorization Date: January 26th, 2014 To: Members of Congress and relevant staff From: Ari Ne’eman, President, Autistic Self Advocacy Network Samantha Crane, Director of Public Policy, Autistic Self Advocacy Network   Subject: Upcoming Re-Authorization of the Combating Autism Act   This memorandum articulates the position of...

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