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Category Archives: Disability Rights and Neurodiversity

The neurodiversity movement represents the disability rights perspective within the Autistic community. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

ASAN Applauds Congressional Letter Urging Self-Advocate Inclusion

FOR IMMEDIATE RELEASE Autistic Self Advocacy Network applauds letter from Congressional champions urging increased representation of autistic adults in Autism CARES Act funded programs. WASHINGTON, D.C.—The Autistic Self Advocacy Network applauded five leading congressional champions for autism services this morning for authoring a letter sent yesterday to the Department...

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ASAN Statement On The Killing Of Nancy Fitzmaurice

The Autistic Self Advocacy Network issued the following statement on Tuesday, October 28th, regarding the killing of Nancy Fitzmaurice.   The Autistic Self Advocacy Network is profoundly concerned by the recent decision from the United Kingdom allowing Great Ormond Street Hospital in London to kill Nancy Fitzmaurice, a disabled 12-year...

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ASAN Letter: Wisconsin’s Sheltered Workshops Aren’t “Community-Based”

This letter is available as a PDF here. October 7, 2014 Honorable Marilyn Tavenner Administrator Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, Maryland 21244   Dear Administrator Tavenner: We recognize that you received a letter from Wisconsin Department of Health Services Secretary Kitty Rhoades on August...

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ACTION ALERT: Will Your Member of Congress Support Autistic People?

Dear friends, We need your help. This summer, President Obama signed into law the Autism CARES Act, replacing the Combating Autism Act and giving us an opportunity to turn over a new leaf in federal autism policy. But we need more than just a change in name – we...

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Webinar Series

Making the New Medicaid HCBS Settings Regulation Work In Your State...

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ASAN Statement on Autism CARES Act

In response to this week’s introduction of the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act of 2014 (S.2449) and the markup of H.R. 4631, the House equivalent, the Autistic Self Advocacy Network has issued the following statement: ASAN is pleased to note that both the Senate and...

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ASAN, Disability Rights Orgs File Amicus Brief Challenging Withholding Medical Care Due to Disability

On Friday May 23, the Autistic Self Advocacy Network, Not Dead Yet, and 12 other disability rights organizations filed an amicus brief in a case challenging the University of Wisconsin Hospital Center’s alleged practice of counseling families of people with developmental disabilities to withhold care for treatable but potentially...

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ASAN Testimony to the Neurological Devices Panel of the Medical Devices Advisory Committee of the FDA

ASAN President Ari Ne’eman gave the following testimony urging the ban of aversive-conditioning devices to the Neurological Devices Panel of the Medical Devices Advisory Committee of the Food and Drug Administration (FDA). Good morning. My name is Ari Ne’eman, and I am testifying here in my role as President...

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Written Comment to the Food and Drug Administration on the Banning of Electrical Aversive Conditioning Devices

ASAN submitted written comment to the Food and Drug Administration, strongly urging the FDA to ban the use of electric  aversive conditioning devices. These comments are available here....

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Disability Community Joint Letter on Combating Autism Act Re-authorization

Dear Senator Menendez, Rep. Smith and Rep. Doyle, We, the undersigned organizations committed to advancing equality of opportunity for people with disabilities, write with regard to the upcoming re-authorization of the Combating Autism Act (CAA). As you consider re-authorizing CAA, we urge you to incorporate the need for substantive...

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