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Category Archives: Research and Data Collection

ASAN supports research that focuses on improving the daily lives of Autistic people, conducted with respect for privacy and the rights of the individual. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

Comments for October 26 IACC Meeting

These comments are available as a PDF here. Thank you for the opportunity to submit written comments. The Autistic Self Advocacy Network (ASAN) continues to be deeply concerned by the allocation of autism research funding.  According to the Office of Autism Research Coordination (OARC), the vast majority of NIH...

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ASAN Expresses Concern over New Autism Research Funding Numbers

The Autistic Self Advocacy Network is deeply concerned by numbers released today by the Office of Autism Research Coordination (OARC) showing that autism research funding around services and adult issues has continued to drop from already low levels over the course of the last several years. Based on data from...

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ASAN Praises Clinton Campaign for Autism Policy Statement, Calls on Other Campaigns to Follow

The Autistic Self Advocacy Network issued the following statement today in response to Hillary Clinton’s issuing of an Autism Policy Statement for her Presidential campaign: The Autistic Self Advocacy Network applauds Secretary Clinton for issuing the 2016 Presidential Campaign’s first robust, comprehensive autism policy statement, including clear references to...

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ASAN Statement on CDC’s New Autism Prevalence Data

The Autistic Self Advocacy Network issued the following statement about the Center for Disease Control’s new Autism Spectrum Disorder (ASD) prevalence data on November 19, 2015. The latest CDC numbers reflect better understanding and diagnosis of autism. The data remains in line with studies showing that autistic people are...

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ASAN Releases New Resource On Medicaid Coverage for Autism Services

ASAN has released a new resource for its toolkit on health coverage for autism-related services. The resource, which is aimed at Medicaid plan administrators, will help plan administrators develop and expand coverage for autism services such as communication supports, occupational therapy, and speech therapy. ASAN released a resource on...

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Secretary Burwell Appoints ASAN Director of Public Policy Sam Crane to IACC

October 28, 2015 Today, the Department of Health and Human Services announced its Secretary Sylvia M. Burwell’s appointment of ASAN Director of Public Policy Sam Crane to the Interagency Autism Coordinating Committee (IACC). The IACC is a Federal advisory committee that coordinates research and services programs within the Department...

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ASAN Statement on GOP Primary Debate Comments on Autism and Vaccination

Despite a wealth of scientific evidence debunking any link between autism and vaccinations, tonight’s Republican primary debate featured prominent commentary from a leading candidate repeating inaccurate information suggesting a link. The Autistic Self Advocacy Network is disappointed that long after the science has spoken, politicians and pundits continue to...

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ASAN Statement Praising Department of Education’s Results Driven Accountability System

Last week, the US Department of Education announced a new accountability framework for state compliance with the Individuals with Disabilities Education Act (IDEA).  This new accountability framework, entitled Results-Driven Accountability, includes for the first time the use of independent outcome data from the National Assessment of Educational Progress (NAEP)...

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Community Concerns Regarding the Google-Autism Speaks Ten Thousand Genomes Program (AUT10K)

In response to the recent announcement of the new Google-Autism Speaks collaboration to produce, expand and analyze the world’s largest private collection of DNA samples of autistic children and adults, many in the autistic community have expressed significant concerns regarding the initiative. The program, entitled the Autism Speaks Ten...

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ASAN Statement on Autism CARES Act

In response to this week’s introduction of the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act of 2014 (S.2449) and the markup of H.R. 4631, the House equivalent, the Autistic Self Advocacy Network has issued the following statement: ASAN is pleased to note that both the Senate and...

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