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Category Archives: Research and Data Collection
ASAN supports research that focuses on improving the daily lives of Autistic people, conducted with respect for privacy and the rights of the individual. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.
ASAN, Disability Rights Organizations Urge Changes to Combating Autism Act
On Monday, the Autistic Self Advocacy Network released a joint letter to Congress, signed by fourteen other organizations, urging changes to the Combating Autism Reauthorization Act, H.R. 4631. June 2, 2014 Dear Chairman Pitts and Ranking Member Pallone: We, the undersigned organizations committed to advancing equality of opportunity for people...
Posted in News, Policy, Research and Data Collection, Self Advocacy and Representation
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Tagged acceptance, Combating Autism Act, self advocacy
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ACTION ALERT: Call On Congress to Oppose H.R. 4631, the Combating Autism Re-Authorization Act
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Tomorrow at 2 PM, the House Energy & Commerce Health Subcommittee will be taking a step to advance H.R. 4631, which would reauthorize the Combating Autism Act. The current version of the bill continues to exclude autistic people from the federal committee that oversees autism research (the Interagency Autism...
Posted in Action, Policy, Research and Data Collection
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Tagged action alerts, policy, research
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ASAN Statement Opposing House CAA Re-authorization Legislation H.R. 4631
The Autistic Self Advocacy Network is deeply concerned by the recently introduced Combating Autism Re-authorization Act of 2014 (H.R. 4631). H.R. 4631 fails to address many of the longstanding problems in the CAA, including the lack of funding and attention to research on services and the needs of adults,...
Posted in News, Policy, Research and Data Collection, Self Advocacy and Representation
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Tagged #stopcombatingme, CAA
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Disability Community Joint Letter on Combating Autism Act Re-authorization
Dear Senator Menendez, Rep. Smith and Rep. Doyle, We, the undersigned organizations committed to advancing equality of opportunity for people with disabilities, write with regard to the upcoming re-authorization of the Combating Autism Act (CAA). As you consider re-authorizing CAA, we urge you to incorporate the need for substantive...
Posted in Changing Perceptions, Disability Rights and Neurodiversity, Policy, Research and Data Collection, Self Advocacy and Representation
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Tagged CAA, Combating Autism Act
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ASAN Issues Statement on Latest CDC Autism Prevalence Data
FOR IMMEDIATE RELEASE: Autistic Self Advocacy Network Issues Statement on Latest CDC Autism Prevalence Data Latest CDC numbers reflect better understanding of autism; racial and gender disparities persist. Washington, DC — March 27th, 2014 — The Autistic Self Advocacy Network issued the following statement in response to the...
Posted in News, Research and Data Collection
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Tagged CDC
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#StopCombatingMe
Nine years ago, Congress passed the Combating Autism Act (CAA), legislation that focused federal autism research and policy activities on creating a world without autistic people. In 2011, Congress re-authorized this deeply flawed legislation, over the objections of self-advocates and our families. Now, with the CAA set to expire...
Posted in Action, Disability Rights and Neurodiversity, News, Research and Data Collection, Self Advocacy and Representation, Therapies and Health Care
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Tagged #stopcombatingme, CAA
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Memorandum on CAA Re-Authorization
Memorandum on CAA Re-Authorization Date: January 26th, 2014 To: Members of Congress and relevant staff From: Ari Ne’eman, President, Autistic Self Advocacy Network Samantha Crane, Director of Public Policy, Autistic Self Advocacy Network Subject: Upcoming Re-Authorization of the Combating Autism Act This memorandum articulates the position of...
Posted in Community Services and Supports, Policy, Research and Data Collection, Self Advocacy and Representation, Therapies and Health Care
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Tagged CAA, policy
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Disability Community Letter on FDA Demographic Subgroup Data
November 20, 2013 Submitted electronically to www.regulations.gov Division of Dockets Management (HFA-305) Food and Drug Administration 5630 Fishers Lane, Rm. 1061 Rockville, MD 20852 Re: Docket ID No. FDA-2013-N-0745, Comments on FDASIA Section 907 Report: “Collection, Analysis, and Availability of Demographic Subgroup Data for FDA-Approved Medical Products”...
Posted in Research and Data Collection, Therapies and Health Care
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Secret Shoppers Needed for LEAD Center Project
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We Need Your Help! For too long people with invisible disabilities have been left out of the unemployment services system. Although people with invisible disabilities have incredibly high unemployment rates, many workforce developers at American Job Centers (AJCs) (old name One Stop Career Centers) have shared that they feel...
Posted in News, Research and Data Collection
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Tagged accommodations, disability, education, research, services, supports
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ASAN Statement on Fein Study on Autism and “Recovery”
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Recently, an article argued that some Autistic children reach what they call the “optimal outcome” of moving out of autism spectrum disorder (ASD). This study greatly concerns ASAN, both in terms of its inherent scientific limitations and the dangerous values framework behind it. Adults who clearly met criteria for...
Posted in News, Research and Data Collection, Therapies and Health Care
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Tagged accommodations, community living, diagnosis, disability, research, services, supports, therapies
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