Main Content

Category Archives: Research and Data Collection

ASAN supports research that focuses on improving the daily lives of Autistic people, conducted with respect for privacy and the rights of the individual. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

ASAN, Disability Rights Organizations Urge Changes to Combating Autism Act

On Monday, the Autistic Self Advocacy Network released a joint letter to Congress, signed by fourteen other organizations, urging changes to the Combating Autism Reauthorization Act, H.R. 4631. June 2, 2014 Dear Chairman Pitts and Ranking Member Pallone: We, the undersigned organizations committed to advancing equality of opportunity for people...

Read More »

Posted in News, Policy, Research and Data Collection, Self Advocacy and Representation | Tagged , , Comments Off on ASAN, Disability Rights Organizations Urge Changes to Combating Autism Act

ACTION ALERT: Call On Congress to Oppose H.R. 4631, the Combating Autism Re-Authorization Act

Tomorrow at 2 PM, the House Energy & Commerce Health Subcommittee will be taking a step to advance H.R. 4631, which would reauthorize the Combating Autism Act. The current version of the bill continues to exclude autistic people from the federal committee that oversees autism research (the Interagency Autism...

Read More »

Posted in Action, Policy, Research and Data Collection | Tagged , , Comments Off on ACTION ALERT: Call On Congress to Oppose H.R. 4631, the Combating Autism Re-Authorization Act

ASAN Statement Opposing House CAA Re-authorization Legislation H.R. 4631

The Autistic Self Advocacy Network is deeply concerned by the recently introduced Combating Autism Re-authorization Act of 2014 (H.R. 4631). H.R. 4631 fails to address many of the longstanding problems in the CAA, including the lack of funding and attention to research on services and the needs of adults,...

Read More »

Posted in News, Policy, Research and Data Collection, Self Advocacy and Representation | Tagged , Comments Off on ASAN Statement Opposing House CAA Re-authorization Legislation H.R. 4631

Disability Community Joint Letter on Combating Autism Act Re-authorization

Dear Senator Menendez, Rep. Smith and Rep. Doyle, We, the undersigned organizations committed to advancing equality of opportunity for people with disabilities, write with regard to the upcoming re-authorization of the Combating Autism Act (CAA). As you consider re-authorizing CAA, we urge you to incorporate the need for substantive...

Read More »

Posted in Changing Perceptions, Disability Rights and Neurodiversity, Policy, Research and Data Collection, Self Advocacy and Representation | Tagged , Comments Off on Disability Community Joint Letter on Combating Autism Act Re-authorization

ASAN Issues Statement on Latest CDC Autism Prevalence Data

FOR IMMEDIATE RELEASE: Autistic Self Advocacy Network Issues Statement on Latest CDC Autism Prevalence Data Latest CDC numbers reflect better understanding of autism; racial and gender disparities persist.   Washington, DC — March 27th, 2014 — The Autistic Self Advocacy Network issued the following statement in response to the...

Read More »

Posted in News, Research and Data Collection | Tagged Comments Off on ASAN Issues Statement on Latest CDC Autism Prevalence Data

#StopCombatingMe

Nine years ago, Congress passed the Combating Autism Act (CAA), legislation that focused federal autism research and policy activities on creating a world without autistic people. In 2011, Congress re-authorized this deeply flawed legislation, over the objections of self-advocates and our families. Now, with the CAA set to expire...

Read More »

Posted in Action, Disability Rights and Neurodiversity, News, Research and Data Collection, Self Advocacy and Representation, Therapies and Health Care | Tagged , Comments Off on #StopCombatingMe

Memorandum on CAA Re-Authorization

Memorandum on CAA Re-Authorization Date: January 26th, 2014 To: Members of Congress and relevant staff From: Ari Ne’eman, President, Autistic Self Advocacy Network Samantha Crane, Director of Public Policy, Autistic Self Advocacy Network   Subject: Upcoming Re-Authorization of the Combating Autism Act   This memorandum articulates the position of...

Read More »

Posted in Community Services and Supports, Policy, Research and Data Collection, Self Advocacy and Representation, Therapies and Health Care | Tagged , Comments Off on Memorandum on CAA Re-Authorization

Disability Community Letter on FDA Demographic Subgroup Data

November 20, 2013                                    Submitted electronically to www.regulations.gov   Division of Dockets Management (HFA-305) Food and Drug Administration 5630 Fishers Lane, Rm. 1061 Rockville, MD 20852   Re: Docket ID No. FDA-2013-N-0745, Comments on FDASIA Section 907 Report: “Collection, Analysis, and Availability of Demographic Subgroup Data for FDA-Approved Medical Products”...

Read More »

Posted in Research and Data Collection, Therapies and Health Care | Comments Off on Disability Community Letter on FDA Demographic Subgroup Data

Secret Shoppers Needed for LEAD Center Project

We Need Your Help! For too long people with invisible disabilities have been left out of the unemployment services system. Although people with invisible disabilities have incredibly high unemployment rates, many workforce developers at American Job Centers (AJCs) (old name One Stop Career Centers) have shared that they feel...

Read More »

Posted in News, Research and Data Collection | Tagged , , , , , Comments Off on Secret Shoppers Needed for LEAD Center Project

ASAN Statement on Fein Study on Autism and “Recovery”

Recently, an article argued that some Autistic children reach what they call the “optimal outcome” of moving out of autism spectrum disorder (ASD). This study greatly concerns ASAN, both in terms of its inherent scientific limitations and the dangerous values framework behind it. Adults who clearly met criteria for...

Read More »

Posted in News, Research and Data Collection, Therapies and Health Care | Tagged , , , , , , , Comments Off on ASAN Statement on Fein Study on Autism and “Recovery”

More information