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Category Archives: Research and Data Collection

ASAN supports research that focuses on improving the daily lives of Autistic people, conducted with respect for privacy and the rights of the individual. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

Update on November 29 Autism Hearing

Today, November 29th, the House Committee on Oversight and Government Reform held a hearing on autism. ASAN has closely followed the news and information leading up to this hearing, and we have kept our supporters and members informed. Last week, we expressed our concern that the hearing initially excluded...

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ACTION ALERT: Tell HHS to Stop “Creative Accounting” with Autism Research

On July 10th, the federal government’s Office of Autism Research Coordination (OARC) released a new report analyzing the distribution of autism research dollars in 2010. This report – entitled the IACC ASD Research Portfolio – is an annual responsibility of the federal government under Public Law 112-32. At first...

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ACTION ALERT: Tell HHS to Balance the Autism Research Agenda

On July 10th, the federal government’s Office of Autism Research Coordination (OARC) released a new report analyzing the distribution of autism research dollars in 2010. This report – entitled the IACC ASD Research Portfolio – is an annual responsibility of the federal government under Public Law 112-32. At first...

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ASAN expresses concern regarding new HHS report on autism research

FOR IMMEDIATE RELEASE: ASAN expresses concern regarding new HHS report on autism research New report uses “creative accounting” to reflect increase in services-research; confirms persistent under-representation of adult needs Washington, DC – July, 10th, 2012 – This morning, the Office of Autism Research Coordination (OARC) within the federal Department...

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ASAN Public Comment on DSM-5 ASD Criteria

Today is the last day to provide public comment to the American Psychiatric Association (APA) regarding the definition of ASD within the DSM-5, the manual used by physicians and many policymakers to define autism and other disability diagnoses. You can find information regarding how to comment on our website,...

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ELSI Symposium Goes Live

Over $1 billion has been spent over the course of the last decade on autism research funding. During a time of constant budget cuts and increasing fiscal pressures on government, this is an astonishing sum. What have we purchased for this investment? How successful has the autism research agenda...

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ASAN’s Ethical, Legal and Social Implications of Autism Research Goes Live

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Grant reviewers needed

In response to our Symposium on Ethical, Legal, and Social Implications of Autism Research, funded by the Administration on Developmental Disabilities, several key federal funders have offered to work with ASAN to identify Autistic adults and other people with disabilities interested in serving on forthcoming federal grant review panels....

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Ethical, Legal and Social Implications of Autism Research

Although research represents a huge component of the national conversation about autism, very little attention has been paid to the ethical issues posed by new developments in autism research and the ways in which this research is frequently conducted. ASAN has received a grant to conduct a new program...

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Autism NOW Center Seeks Input

The Autism NOW National Resource and Information Center has created a survey to find out what people think about values and ethics as they relate to autism, developmental and intellectual disabilities. The survey is part of a process to create a Core Values Statement for the Autism NOW Center....

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