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Category Archives: Research and Data Collection
Jewish Federations of North America Seek to Amend Combating Autism Act
Congress Urged to Amend Autism Legislation: The Jewish Federations of North America, along with ASAN, seek amendments to the Combating Autism Act to ensure the involvement of self-advocates and to fund more research on services and the needs of adults. The JFNA Action Alert contains information on how to...
Posted in Research and Data Collection
Tagged representation, research, services
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Research on Community Involvement and Experiences
Community Experiences Surveyed: Two research surveys addressing issues of community involvement and experiences in society, one by the AASPIRE Gateway Project and the other by Adena Rottenstein and other researchers at the University of Michigan, seek input from Autistic participants....
Posted in Research and Data Collection
Tagged research
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ASAN Announces Opposition to Menendez-Enzi-Brown Autism Legislation
Press Release Opposing Autism Legislation: ASAN has issued a press release stating that an extension of the Combating Autism Act would lock in place an unacceptable status quo without services, without consideration of the needs of adults and without inclusion of self-advocates. We oppose extending the act without needed...
Posted in News, Press, Research and Data Collection
Tagged representation, research, services
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ACTION ALERT: Tell Congress “No” to Three More Years of the Same On Autism Policy
ACTION ALERT: Stop Extension of Flawed Autism Policy. Congress is considering legislation to extend the Combating Autism Act, which fails to provide for services and was passed without the involvement of self-advocates, for three more years. Contact your Senators today to oppose re-authorization without needed changes!...
Posted in Action, Research and Data Collection
Tagged action alerts, representation, research, services
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Comments at April 30, 2010 IACC Meeting
Those researchers who work in close consultation with, and call on the expertise of, those of us living on the autism spectrum, in areas of development, interpretation, implementation, and evaluation, are the researchers who will be most likely to make advances that will directly impact the lives of autistic...
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Tagged IACC, research
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Secretary Sebelius Appoints ASAN President Ari Ne’eman to IACC
The Autistic Self Advocacy Network applauds HHS Secretary Kathleen Sebelius' appointment of ASAN President Ari Ne'eman to the Interagency Autism Coordinating Committee (IACC), a Federal advisory committee that coordinates all efforts within the Department of Health and Human Services (HHS) concerning autism....
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Tagged IACC
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Comments at November 10, 2009 IACC Meeting
The use of the term, and concept of “severity,” is questionable for several reasons. First, “severity” is often contextual, over both time and other things like situation and location. What is being looked at when using the “severity” criterion is how “observable” the autistic characteristic is. Whether or not...
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Tagged IACC, research
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Comments at October 23, 2009 IACC Meeting
Information about Services Needed: Research into causes, biomarkers, prevention, etc. will not help people who are alive today and need evidence-based information about services and supports. Recent research and initiatives in the United Kingdom can provide a model for services-oriented research and also research into adult issues....
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Tagged IACC, research
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ASAN Announces the AASPIRE Gateway Project
Collaborative Research Project: A gateway for research committed to inclusion, respect, accessibility, and community relevance, the AASPIRE Gateway Project is recruiting participants with and without disabilities and participants on the autistic spectrum....
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Tagged AASPIRE, research
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Response to Autism Speaks’ AFAA Report
ASAN has issued a statement commenting on the AFAA report by Autism Speaks and several other organizations, which discusses adult supports and services....
Posted in Research and Data Collection
Tagged Autism Speaks, research
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