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Category Archives: Self Advocacy and Representation

ASAN seeks to ensure meaningful involvement of Autistic self-advocates in making policy at all levels. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

ASAN Statement on New Jersey Assisted Suicide Bill Hearing

Despite leading disability rights organizations’ long history of opposition to legalization of assisted suicide, the New Jersey Senate Health, Human Services and Senior Citizens Committee held a hearing yesterday on the state’s proposed assisted suicide bill without inviting any representatives of the disability community as witnesses. People with disabilities,...

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Posted in Changing Perceptions, Disability Rights and Neurodiversity, News, Policy, Self Advocacy and Representation | Tagged , , , , Comments Off

ASAN Comment on California’s HCBS Transition Plan

Department of Health Care Services Long-Term Care Division, STP comments 1501 Capitol Avenue, MS 4503 PO Box 997437 Sacramento, CA 95899-7437 VIA EMAIL: STP@dhcs.ca.gov   Dear Sir or Madam: The Autistic Self Advocacy Network (ASAN) appreciates the opportunity to submit the following comments on California’s statewide home and community-based...

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Posted in Community Services and Supports, News, Policy, Self Advocacy and Representation, Therapies and Health Care | Tagged , , Comments Off

ASAN Applauds Congressional Letter Urging Self-Advocate Inclusion

FOR IMMEDIATE RELEASE Autistic Self Advocacy Network applauds letter from Congressional champions urging increased representation of autistic adults in Autism CARES Act funded programs. WASHINGTON, D.C.—The Autistic Self Advocacy Network applauded five leading congressional champions for autism services this morning for authoring a letter sent yesterday to the Department...

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Posted in Disability Rights and Neurodiversity, News, Press, Self Advocacy and Representation | Tagged , , , Comments Off

ACTION ALERT: Will Your Member of Congress Support Autistic People?

Dear friends, We need your help. This summer, President Obama signed into law the Autism CARES Act, replacing the Combating Autism Act and giving us an opportunity to turn over a new leaf in federal autism policy. But we need more than just a change in name – we...

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Posted in Disability Rights and Neurodiversity, News, Self Advocacy and Representation, Therapies and Health Care | Tagged , Comments Off

ASAN Unveils Toolkit for Advocates on New Home and Community-Based Settings Rules

ASAN has published a toolkit for advocates, families and administrators on how to ensure that people with disabilities receive Medicaid-funded Home and Community-Based Services in integrated settings that offer full access to the community. Home and community-based services are an important source of support for many people with disabilities who need...

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Posted in Community Services and Supports, Employment, News, Policy, Publications, Self Advocacy and Representation | Tagged , , , , , Comments Off

ASAN Unveils Toolkit for Advocates on Health Care and the Transition to Adulthood

ASAN has prepared a comprehensive toolkit to empower people with disabilities, their families, and other disability advocates to help youth with disabilities manage their own health care as they transition to adulthood. As ASAN found in our 2013 report, youth with intellectual and developmental disabilities face a variety of barriers to...

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Community Concerns Regarding the Google-Autism Speaks Ten Thousand Genomes Program (AUT10K)

In response to the recent announcement of the new Google-Autism Speaks collaboration to produce, expand and analyze the world’s largest private collection of DNA samples of autistic children and adults, many in the autistic community have expressed significant concerns regarding the initiative. The program, entitled the Autism Speaks Ten...

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Posted in News, Research and Data Collection, Self Advocacy and Representation, Therapies and Health Care | Tagged , Comments Off

ASAN Statement on Autism CARES Act

In response to this week’s introduction of the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act of 2014 (S.2449) and the markup of H.R. 4631, the House equivalent, the Autistic Self Advocacy Network has issued the following statement: ASAN is pleased to note that both the Senate and...

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Posted in Autistic Community and Allies, Disability Rights and Neurodiversity, News, Policy, Research and Data Collection, Self Advocacy and Representation | Tagged , , , , Comments Off

ASAN, Disability Rights Organizations Urge Changes to Combating Autism Act

On Monday, the Autistic Self Advocacy Network released a joint letter to Congress, signed by fourteen other organizations, urging changes to the Combating Autism Reauthorization Act, H.R. 4631. June 2, 2014 Dear Chairman Pitts and Ranking Member Pallone: We, the undersigned organizations committed to advancing equality of opportunity for people...

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ASAN Statement Opposing House CAA Re-authorization Legislation H.R. 4631

The Autistic Self Advocacy Network is deeply concerned by the recently introduced Combating Autism Re-authorization Act of 2014 (H.R. 4631). H.R. 4631 fails to address many of the longstanding problems in the CAA, including the lack of funding and attention to research on services and the needs of adults,...

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