Main Content

Category Archives: Self Advocacy and Representation

ASAN seeks to ensure meaningful involvement of Autistic self-advocates in making policy at all levels. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

ASAN Unveils Toolkit for Advocates on Health Care and the Transition to Adulthood

ASAN has prepared a comprehensive toolkit to empower people with disabilities, their families, and other disability advocates to help youth with disabilities manage their own health care as they transition to adulthood. As ASAN found in our 2013 report, youth with intellectual and developmental disabilities face a variety of barriers to...

Read More »

Posted in News, Policy, Publications, Self Advocacy and Representation, Therapies and Health Care | Comments Off

Community Concerns Regarding the Google-Autism Speaks Ten Thousand Genomes Program (AUT10K)

In response to the recent announcement of the new Google-Autism Speaks collaboration to produce, expand and analyze the world’s largest private collection of DNA samples of autistic children and adults, many in the autistic community have expressed significant concerns regarding the initiative. The program, entitled the Autism Speaks Ten...

Read More »

Posted in News, Research and Data Collection, Self Advocacy and Representation, Therapies and Health Care | Tagged , Comments Off

ASAN Statement on Autism CARES Act

In response to this week’s introduction of the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act of 2014 (S.2449) and the markup of H.R. 4631, the House equivalent, the Autistic Self Advocacy Network has issued the following statement: ASAN is pleased to note that both the Senate and...

Read More »

Posted in Autistic Community and Allies, Disability Rights and Neurodiversity, News, Policy, Research and Data Collection, Self Advocacy and Representation | Tagged , , , , Comments Off

ASAN, Disability Rights Organizations Urge Changes to Combating Autism Act

On Monday, the Autistic Self Advocacy Network released a joint letter to Congress, signed by fourteen other organizations, urging changes to the Combating Autism Reauthorization Act, H.R. 4631. June 2, 2014 Dear Chairman Pitts and Ranking Member Pallone: We, the undersigned organizations committed to advancing equality of opportunity for people...

Read More »

Posted in News, Policy, Research and Data Collection, Self Advocacy and Representation | Tagged , , Comments Off

ASAN Statement Opposing House CAA Re-authorization Legislation H.R. 4631

The Autistic Self Advocacy Network is deeply concerned by the recently introduced Combating Autism Re-authorization Act of 2014 (H.R. 4631). H.R. 4631 fails to address many of the longstanding problems in the CAA, including the lack of funding and attention to research on services and the needs of adults,...

Read More »

Posted in News, Policy, Research and Data Collection, Self Advocacy and Representation | Tagged , Comments Off

Sign up for Summer Webinar Training Series!

The Autistic Self Advocacy Network is gearing up for the summer and are excited to share upcoming webinars with you. These webinars are trainings for self advocate group leaders across the country. ...

Read More »

Posted in PADSA, Self Advocacy and Representation | Tagged Comments Off

Disability Community Joint Letter on Combating Autism Act Re-authorization

Dear Senator Menendez, Rep. Smith and Rep. Doyle, We, the undersigned organizations committed to advancing equality of opportunity for people with disabilities, write with regard to the upcoming re-authorization of the Combating Autism Act (CAA). As you consider re-authorizing CAA, we urge you to incorporate the need for substantive...

Read More »

Posted in Changing Perceptions, Disability Rights and Neurodiversity, Policy, Research and Data Collection, Self Advocacy and Representation | Tagged , Comments Off

New ASAN resource on starting a nonprofit

The Autistic Self Advocacy Network is proud to announce the release of a new technical assistance document Starting a Non-Profit is Like Having a Baby: 8 Questions Your Group Should Ask Before Starting a Non-Profit. Many self advocacy organizations want to become formalized non-profits recognized by the state and...

Read More »

Posted in Autistic Community and Allies, Disability Rights and Neurodiversity, News, PADSA, Self Advocacy and Representation | Tagged , Comments Off

#StopCombatingMe

Nine years ago, Congress passed the Combating Autism Act (CAA), legislation that focused federal autism research and policy activities on creating a world without autistic people. In 2011, Congress re-authorized this deeply flawed legislation, over the objections of self-advocates and our families. Now, with the CAA set to expire...

Read More »

Posted in Action, Disability Rights and Neurodiversity, News, Research and Data Collection, Self Advocacy and Representation, Therapies and Health Care, Uncategorized | Tagged , Comments Off

Memorandum on CAA Re-Authorization

Memorandum on CAA Re-Authorization Date: January 26th, 2014 To: Members of Congress and relevant staff From: Ari Ne’eman, President, Autistic Self Advocacy Network Samantha Crane, Director of Public Policy, Autistic Self Advocacy Network   Subject: Upcoming Re-Authorization of the Combating Autism Act   This memorandum articulates the position of...

Read More »

Posted in Community Services and Supports, Policy, Research and Data Collection, Self Advocacy and Representation, Therapies and Health Care | Tagged , Comments Off

More information