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Category Archives: Self Advocacy and Representation

ASAN seeks to ensure meaningful involvement of Autistic self-advocates in making policy at all levels. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

The Right to Make Choices: New Resource on Supported Decision-Making

Are you a person with a disability? Do you have a right to make choices in your life? Are you under guardianship? Does your guardian make choices for you that you don’t want? Do you have the supports that you need to make decisions about where to live, what...

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ASAN Praises Clinton Campaign for Autism Policy Statement, Calls on Other Campaigns to Follow

The Autistic Self Advocacy Network issued the following statement today in response to Hillary Clinton’s issuing of an Autism Policy Statement for her Presidential campaign: The Autistic Self Advocacy Network applauds Secretary Clinton for issuing the 2016 Presidential Campaign’s first robust, comprehensive autism policy statement, including clear references to...

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Statement on Autism Speaks Board Appointments

On December 7, 2015, the Autistic Self Advocacy Network (ASAN) issued the following statement regarding Autism Speaks’ recent appointment of two Autistic people to its Board of Directors. On December 7, after 10 years of widespread criticism, Autism Speaks announced the appointment of two Autistic people to its Board...

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Help ASAN support self-advocacy on #GivingTuesday

Dear Friends, The Autistic Self Advocacy Network is a small organization with a large mission: empowering Autistic people throughout the country and helping our community stand up to those who want to silence us. That’s a hard task, but it has to be done. Without a strong, Autistic-led voice...

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Secretary Burwell Appoints ASAN Director of Public Policy Sam Crane to IACC

October 28, 2015 Today, the Department of Health and Human Services announced its Secretary Sylvia M. Burwell’s appointment of ASAN Director of Public Policy Sam Crane to the Interagency Autism Coordinating Committee (IACC). The IACC is a Federal advisory committee that coordinates research and services programs within the Department...

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ASAN Statement on GOP Primary Debate Comments on Autism and Vaccination

Despite a wealth of scientific evidence debunking any link between autism and vaccinations, tonight’s Republican primary debate featured prominent commentary from a leading candidate repeating inaccurate information suggesting a link. The Autistic Self Advocacy Network is disappointed that long after the science has spoken, politicians and pundits continue to...

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ASAN Comment on Proposed Managed Care Rule

This letter is available as a PDF here and a Word document here.  On behalf of the Autistic Self Advocacy Network, I write to comment on the Medicaid and CHIP Managed Care Proposed Rule CMS-2390-P. The Autistic Self Advocacy Network is the leading national advocacy organization run by and...

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Announcing the ASAN Autistic Scholars Fellowship

In honor of the 25th Anniversary of the Americans with Disabilities Act, the Autistic Self Advocacy Network (ASAN) is very pleased to announce the beginning of a new college scholarship program for autistic students, the Autistic Scholars Fellowship. The ASAN Autistic Scholars Fellowship program, a new ASAN project to advance campus...

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Autistic Pride Day 2015: A Message to the Autistic Community

Today is Autistic Pride Day. For ten years, our community has come together on June 18th to celebrate who we are and affirm our right to build a culture and community of our own. When Autistic Pride Day first began, it was the first in what would become a...

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Statement on CDC Autism Monitoring Efforts

On April 22nd, 2015, the Autistic Self Advocacy Network issued the following statement regarding the CDC’s recent announcement as to the expansion of the Autism and Developmental Disabilities Monitoring Network (ADDM). The Autistic Self Advocacy Network is concerned that the recently announced expansion of data collection and surveillance by...

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