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Category Archives: Self Advocacy and Representation

ASAN seeks to ensure meaningful involvement of Autistic self-advocates in making policy at all levels. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

Autistic Self-Advocacy Network, LGBT Groups Release Statement on Needs of Trans Autistic People

Today, the Autistic Self-Advocacy Network, the National LGBTQ Task Force, and the National Center for Transgender Equality released a joint statement about the needs of transgender and gender non-conforming autistic people and launched a social media campaign with the hashtag #AutisticTransPride to highlight transgender autistic voices and leadership. Earlier...

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A voice for all: Why I’m fighting to help Autistic students access the form of communication that works best for them.

This March, I filed a complaint with the Department of Justice on behalf of five non-speaking autistic students in Arlington, VA who use letter-boards to communicate (or, as one of these students has dubbed them, the “Arlington Five”). These students are only a few of the many non-speaking autistic...

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ASAN Files ADA Complaint on Communication Access in Schools

ARLINGTON, VIRGINIA– As part of its new communication rights initiative, Autistic Self Advocacy Network (ASAN) has filed a groundbreaking complaint with the Department of Justice, seeking communication supports for five non-speaking autistic students in Arlington, Virginia. The Arlington Public Schools system (APS) has repeatedly denied these students’ requests to...

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ASAN Joins Letter Opposing Harmful Mental Health Bill

The Autistic Self Advocacy Network has joined a letter led by the Leadership Conference on Civil and Human Rights opposing legislation that would undermine protection and advocacy organizations for people with psychosocial disabilities, erode privacy protections, and increase institutionalization and coercive interventions. Although our mental health services system is...

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The Right to Make Choices: New Resource on Supported Decision-Making

Are you a person with a disability? Do you have a right to make choices in your life? Are you under guardianship? Does your guardian make choices for you that you don’t want? Do you have the supports that you need to make decisions about where to live, what...

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Statement on Autism Speaks Board Appointments

On December 7, 2015, the Autistic Self Advocacy Network (ASAN) issued the following statement regarding Autism Speaks’ recent appointment of two Autistic people to its Board of Directors. On December 7, after 10 years of widespread criticism, Autism Speaks announced the appointment of two Autistic people to its Board...

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Help ASAN support self-advocacy on #GivingTuesday

Dear Friends, The Autistic Self Advocacy Network is a small organization with a large mission: empowering Autistic people throughout the country and helping our community stand up to those who want to silence us. That’s a hard task, but it has to be done. Without a strong, Autistic-led voice...

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Secretary Burwell Appoints ASAN Director of Public Policy Sam Crane to IACC

October 28, 2015 Today, the Department of Health and Human Services announced its Secretary Sylvia M. Burwell’s appointment of ASAN Director of Public Policy Sam Crane to the Interagency Autism Coordinating Committee (IACC). The IACC is a Federal advisory committee that coordinates research and services programs within the Department...

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ASAN Statement on GOP Primary Debate Comments on Autism and Vaccination

Despite a wealth of scientific evidence debunking any link between autism and vaccinations, tonight’s Republican primary debate featured prominent commentary from a leading candidate repeating inaccurate information suggesting a link. The Autistic Self Advocacy Network is disappointed that long after the science has spoken, politicians and pundits continue to...

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ASAN Comment on Proposed Managed Care Rule

This letter is available as a PDF here and a Word document here.  On behalf of the Autistic Self Advocacy Network, I write to comment on the Medicaid and CHIP Managed Care Proposed Rule CMS-2390-P. The Autistic Self Advocacy Network is the leading national advocacy organization run by and...

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