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Category Archives: Self Advocacy and Representation
ASAN seeks to ensure meaningful involvement of Autistic self-advocates in making policy at all levels. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.
Autistic Pride Day 2015: A Message to the Autistic Community
Today is Autistic Pride Day. For ten years, our community has come together on June 18th to celebrate who we are and affirm our right to build a culture and community of our own. When Autistic Pride Day first began, it was the first in what would become a...
Posted in Autistic Community and Allies, Blog, Self Advocacy and Representation
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Tagged autistic community, autistic culture, autistic pride day, blog
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Statement on CDC Autism Monitoring Efforts
On April 22nd, 2015, the Autistic Self Advocacy Network issued the following statement regarding the CDC’s recent announcement as to the expansion of the Autism and Developmental Disabilities Monitoring Network (ADDM). The Autistic Self Advocacy Network is concerned that the recently announced expansion of data collection and surveillance by...
Posted in Disability Rights and Neurodiversity, News, Self Advocacy and Representation
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ASAN Statement on New Jersey Assisted Suicide Bill Hearing
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Despite leading disability rights organizations’ long history of opposition to legalization of assisted suicide, the New Jersey Senate Health, Human Services and Senior Citizens Committee held a hearing yesterday on the state’s proposed assisted suicide bill without inviting any representatives of the disability community as witnesses. People with disabilities,...
Posted in Changing Perceptions, Disability Rights and Neurodiversity, News, Policy, Self Advocacy and Representation
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Tagged disability, policy, representation, self advocacy, stigma
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ASAN Comment on California’s HCBS Transition Plan
Department of Health Care Services Long-Term Care Division, STP comments 1501 Capitol Avenue, MS 4503 PO Box 997437 Sacramento, CA 95899-7437 VIA EMAIL: STP@dhcs.ca.gov Dear Sir or Madam: The Autistic Self Advocacy Network (ASAN) appreciates the opportunity to submit the following comments on California’s statewide home and community-based...
Posted in Community Services and Supports, News, Policy, Self Advocacy and Representation, Therapies and Health Care
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Tagged CA, HCBS, policy
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ASAN Applauds Congressional Letter Urging Self-Advocate Inclusion
FOR IMMEDIATE RELEASE Autistic Self Advocacy Network applauds letter from Congressional champions urging increased representation of autistic adults in Autism CARES Act funded programs. WASHINGTON, D.C.—The Autistic Self Advocacy Network applauded five leading congressional champions for autism services this morning for authoring a letter sent yesterday to the Department...
Posted in Disability Rights and Neurodiversity, News, Press, Self Advocacy and Representation
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Tagged disability, inclusion, representation, self advocacy
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ACTION ALERT: Will Your Member of Congress Support Autistic People?
Dear friends, We need your help. This summer, President Obama signed into law the Autism CARES Act, replacing the Combating Autism Act and giving us an opportunity to turn over a new leaf in federal autism policy. But we need more than just a change in name – we...
Posted in Action, Disability Rights and Neurodiversity, News, Self Advocacy and Representation, Therapies and Health Care
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Tagged action alerts, Autism CARES
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ASAN Unveils Toolkit for Advocates on New Home and Community-Based Settings Rules
ASAN has published a toolkit for advocates, families and administrators on how to ensure that people with disabilities receive Medicaid-funded Home and Community-Based Services in integrated settings that offer full access to the community. Home and community-based services are an important source of support for many people with disabilities who need...
Posted in Community Services and Supports, Employment, News, Policy, Publications, Self Advocacy and Representation
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Tagged community living, Medicaid, policy, self advocacy, services, supports
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ASAN Unveils Toolkit for Advocates on Health Care and the Transition to Adulthood
ASAN has prepared a comprehensive toolkit to empower people with disabilities, their families, and other disability advocates to help youth with disabilities manage their own health care as they transition to adulthood. As ASAN found in our 2013 report, youth with intellectual and developmental disabilities face a variety of barriers to...
Posted in News, Policy, Publications, Self Advocacy and Representation, Therapies and Health Care
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Community Concerns Regarding the Google-Autism Speaks Ten Thousand Genomes Program (AUT10K)
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In response to the recent announcement of the new Google-Autism Speaks collaboration to produce, expand and analyze the world’s largest private collection of DNA samples of autistic children and adults, many in the autistic community have expressed significant concerns regarding the initiative. The program, entitled the Autism Speaks Ten...
Posted in News, Research and Data Collection, Self Advocacy and Representation, Therapies and Health Care
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Tagged representation, research
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ASAN Statement on Autism CARES Act
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In response to this week’s introduction of the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act of 2014 (S.2449) and the markup of H.R. 4631, the House equivalent, the Autistic Self Advocacy Network has issued the following statement: ASAN is pleased to note that both the Senate and...
Posted in Autistic Community and Allies, Disability Rights and Neurodiversity, News, Policy, Research and Data Collection, Self Advocacy and Representation
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Tagged policy, representation, research, self advocacy, supports
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