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Category Archives: Therapies and Health Care

Health care disparities need to be remedied and beneficial therapies made more widely available; however, the use of scientifically unproven treatments and those that focus on normalization should be discouraged. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

Statement on FDA Proposed Rule Banning Use of Electric Shock Devices

On April 22, 2016, the Autistic Self Advocacy Network (ASAN) issued the following statement on the proposed FDA rule to ban the use of electric shock devices such as those used at the Judge Rotenberg Center. Today, the Food and Drug Administration (FDA) released a proposed rule to ban...

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ASAN Joint Statement on the Death of Kayden Clarke

We, the undersigned disability and LGBT rights organizations, strongly condemn the police shooting of Kayden Clarke, an Autistic transgender man, in his home on February 4 in Mesa, Arizona. Clarke, who identified as having Asperger’s Syndrome – a diagnosis on the autism spectrum – was killed by police who...

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Autistic Self Advocacy Network Joins Disability Rights Amicus Brief Opposing Physician-Assisted Suicide in New York

On Wednesday January 6, the Autistic Self Advocacy Network joined Not Dead Yet and nine other disability rights organizations in filing a friend-of-the-court brief opposing physician-assisted suicide in New York. The brief, filed in a New York appeals court, supports a lower court ruling dismissing a lawsuit that sought...

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ASAN Releases New Resource On Medicaid Coverage for Autism Services

ASAN has released a new resource for its toolkit on health coverage for autism-related services. The resource, which is aimed at Medicaid plan administrators, will help plan administrators develop and expand coverage for autism services such as communication supports, occupational therapy, and speech therapy. ASAN released a resource on...

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Q&A: HCBS “Heightened Scrutiny” Regulation

This Q&A provides an overview of the requirements of 2014 federal regulations that any setting receiving Medicaid home and community-based services (HCBS) funding must have certain community qualities and not be institutional in nature. It also covers when a setting presumed to have institutional qualities may be approved to...

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ASAN Praises ED Letter Urging Schools to Look Beyond ABA

The Autistic Self Advocacy Network applauds the Department of Education’s Office of Special Education Programs (OSEP) for their July 6th Dear Colleague letter to states expressing concern that schools may be inappropriately limiting services offered to autistic children to those offered by Applied Behavioral Analysis (ABA) therapists. “Some IDEA...

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ASAN Unveils Resource on Medicaid Coverage for Autism-Related Services

The Autistic Self Advocacy Network is proud to announce the release of a new resource for autistic people and our families on Medicaid coverage for autism-related services. These services can include developmental approaches regarding social communication, sensory integration, emotional regulation, and adaptive skills. Until now, much advocacy for coverage...

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ASAN, Disability Rights Organizations Call for Ban on Electric Skin Shock Devices

This press release is available as a Word document and in PDF format. Today, the Autistic Self Advocacy Network (ASAN), joined by over 60 disability advocacy organizations, called on the FDA to ban the use of contingent electric shock devices to modify the behavior of children and adults with...

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ASAN Letter to FDA Calling for Ban on Electric Skin Shock Devices

This letter is available as a Word document and in PDF format. June 4, 2015 Dr. Stephen Ostroff Commissioner U.S. Food and Drug Administration Re: Docket No. FDA-2014-N-0238 Dear Commissioner Ostroff, We are writing to urge the FDA to act on the recommendations of the Neurological Devices Panel of...

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ASAN Calls for Expanded Coverage of Assistive Communication Devices

The Autistic Self Advocacy Network has called on the Centers for Medicare and Medicaid Services (CMS) to recognize tablets – such as iPads – as assistive communication devices. Many autistic people use speech-generation programs on tablets to communicate. Currently, people enrolled in Medicare can only get coverage for special speech-generation...

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