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Category Archives: Therapies and Health Care
Health care disparities need to be remedied and beneficial therapies made more widely available; however, the use of scientifically unproven treatments and those that focus on normalization should be discouraged. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.
ASAN, Disability Rights Organizations Call for Ban on Electric Skin Shock Devices
This press release is available as a Word document and in PDF format. Today, the Autistic Self Advocacy Network (ASAN), joined by over 60 disability advocacy organizations, called on the FDA to ban the use of contingent electric shock devices to modify the behavior of children and adults with...
Posted in Disability Rights and Neurodiversity, Preventing Abuse and Bullying, Therapies and Health Care
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Tagged aversives and Judge Rotenberg Center
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ASAN Letter to FDA Calling for Ban on Electric Skin Shock Devices
This letter is available as a Word document and in PDF format. June 4, 2015 Dr. Stephen Ostroff Commissioner U.S. Food and Drug Administration Re: Docket No. FDA-2014-N-0238 Dear Commissioner Ostroff, We are writing to urge the FDA to act on the recommendations of the Neurological Devices Panel of...
Posted in Disability Rights and Neurodiversity, Preventing Abuse and Bullying, Therapies and Health Care
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Tagged aversives and Judge Rotenberg Center
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ASAN Calls for Expanded Coverage of Assistive Communication Devices
The Autistic Self Advocacy Network has called on the Centers for Medicare and Medicaid Services (CMS) to recognize tablets – such as iPads – as assistive communication devices. Many autistic people use speech-generation programs on tablets to communicate. Currently, people enrolled in Medicare can only get coverage for special speech-generation...
Posted in Community Services and Supports, News, Policy, Therapies and Health Care
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Tagged aac, health care, Medicare, press release
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CPSD: Wisconsin Long-Term Care Letter
This letter is available as a PDF here. Senator Darling Joint Finance Committee Co-Chair State Capitol, Room 317 East Madison, WI 53707 Representative Nygren Joint Finance Committee Co-Chair State Capitol, Room 309 East Madison, WI 53708 Dear Sen. Darling, Rep. Nygren, and members of the Joint Finance Committee; On...
Posted in Disability Rights and Neurodiversity, Therapies and Health Care
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Tagged community living, disability, policy, services
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#NoModernAsylums: ASAN Statement Condemning NYTimes Op-Ed Supporting Institutionalization
The Autistic Self Advocacy Network is appalled by Christine Montross’s February 18th op-ed in the New York Times promoting a return to mental institutions. Montross’s op-ed is part of a dangerous agenda to send people with disabilities back to institutions. She cites cases of intense support needs and behavioral difficulties...
Posted in News, Therapies and Health Care
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Tagged autistic community, inclusion, segregation
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ASAN Joined by Coalition Supporting MD Anti-Organ Transplant Discrimination Bill
You can download the coalition’s testimony as a PDF here. SB 792 Public Health – Nondiscrimination in Access to Anatomical Gifts and Organ Transplantation Senate Finance Committee March 18, 2015 Position: SUPPORT The Arc Maryland, Maryland Association of Community Services (MACS), Maryland DD Council, Maryland Disability Law Center (MDLC),...
Posted in Disability Rights and Neurodiversity, News, Therapies and Health Care
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Autistic Self Advocacy Network Files Amicus Brief Challenging Discriminatory Denial of Health Care
On Monday January 26, the Autistic Self Advocacy Network, Not Dead Yet, and 13 other disability rights organizations filed a second amicus brief in a case defending the rights of people with disabilities to basic medical care. Disability Rights Wisconsin filed the initial lawsuit, Disability Rights Wisconsin v. University of...
Posted in Disability Rights and Neurodiversity, Policy, Therapies and Health Care
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Tagged disability, disability rights wisconsin, discrimination, health care, murder
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ASAN Comment on California’s HCBS Transition Plan
Department of Health Care Services Long-Term Care Division, STP comments 1501 Capitol Avenue, MS 4503 PO Box 997437 Sacramento, CA 95899-7437 VIA EMAIL: STP@dhcs.ca.gov Dear Sir or Madam: The Autistic Self Advocacy Network (ASAN) appreciates the opportunity to submit the following comments on California’s statewide home and community-based...
Posted in Community Services and Supports, News, Policy, Self Advocacy and Representation, Therapies and Health Care
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Tagged CA, HCBS, policy
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ASAN Statement On The Killing Of Nancy Fitzmaurice
The Autistic Self Advocacy Network issued the following statement on Tuesday, October 28th, regarding the killing of Nancy Fitzmaurice. The Autistic Self Advocacy Network is profoundly concerned by the recent decision from the United Kingdom allowing Great Ormond Street Hospital in London to kill Nancy Fitzmaurice, a disabled 12-year...
Posted in Disability Rights and Neurodiversity, News, Therapies and Health Care
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Tagged filicide
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ASAN Letter: California Should Cover More Than ABA
This letter is available in PDF form here. September 29, 2014 Toby Douglas, Director California Department of Health Care Services P.O. Box 997413, MS 0000 Sacramento, CA 95899-7413 Dear Mr. Douglas, We, the undersigned organizations representing people with intellectual and developmental disabilities, their families, service-providers and researchers, write...
Posted in News, Therapies and Health Care
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Tagged ABA, CA
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