Main Content

Category Archives: Therapies and Health Care

Health care disparities need to be remedied and beneficial therapies made more widely available; however, the use of scientifically unproven treatments and those that focus on normalization should be discouraged. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

Disability Community Letter to CMS re: Behavioral Health Services and Olmstead

| JuliaBascom
This letter can be viewed as a PDF here. Administrator Tavenner’s response from February 2015 is available as a scanned PDF here, and as a converted Word document here. Honorable Marilyn Tavenner Administrator Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, Maryland 21244 September 29, 2014 Dear...

Read More »

Posted in News, Therapies and Health Care | Tagged , Comments Off on Disability Community Letter to CMS re: Behavioral Health Services and Olmstead

ACTION ALERT: Will Your Member of Congress Support Autistic People?

| JuliaBascom
Dear friends, We need your help. This summer, President Obama signed into law the Autism CARES Act, replacing the Combating Autism Act and giving us an opportunity to turn over a new leaf in federal autism policy. But we need more than just a change in name – we...

Read More »

Posted in Action, Disability Rights and Neurodiversity, News, Self Advocacy and Representation, Therapies and Health Care | Tagged , Comments Off on ACTION ALERT: Will Your Member of Congress Support Autistic People?

Webinar Series

| JuliaBascom
Making the New Medicaid HCBS Settings Regulation Work In Your State...

Read More »

Posted in Disability Rights and Neurodiversity, News, Therapies and Health Care | Tagged Comments Off on Webinar Series

“Prisoners of the Apparatus”: The Judge Rotenberg Center

| Ianthe Dempsey
By Quentin Davies The Judge Rotenberg Center (JRC) in Canton, Massachusetts, has long been criticized for its treatment of disabled children and adults. It has been condemned by the current and previous United Nations Special Rapporteurs on Torture, many disability rights groups, current Massachusetts governor Deval Patrick, and an FDA...

Read More »

Posted in Blog, Preventing Abuse and Bullying, Therapies and Health Care | Tagged , , , , Comments Off on “Prisoners of the Apparatus”: The Judge Rotenberg Center

ASAN Unveils Toolkit for Advocates on Health Care and the Transition to Adulthood

| Ianthe Dempsey
ASAN has prepared a comprehensive toolkit to empower people with disabilities, their families, and other disability advocates to help youth with disabilities manage their own health care as they transition to adulthood. As ASAN found in our 2013 report, youth with intellectual and developmental disabilities face a variety of barriers to...

Read More »

Posted in News, Policy, Publications, Self Advocacy and Representation, Therapies and Health Care | Comments Off on ASAN Unveils Toolkit for Advocates on Health Care and the Transition to Adulthood

Community Concerns Regarding the Google-Autism Speaks Ten Thousand Genomes Program (AUT10K)

| admin
In response to the recent announcement of the new Google-Autism Speaks collaboration to produce, expand and analyze the world’s largest private collection of DNA samples of autistic children and adults, many in the autistic community have expressed significant concerns regarding the initiative. The program, entitled the Autism Speaks Ten...

Read More »

Posted in News, Research and Data Collection, Self Advocacy and Representation, Therapies and Health Care | Tagged , Comments Off on Community Concerns Regarding the Google-Autism Speaks Ten Thousand Genomes Program (AUT10K)

ASAN, Disability Rights Orgs File Amicus Brief Challenging Withholding Medical Care Due to Disability

| JuliaBascom
On Friday May 23, the Autistic Self Advocacy Network, Not Dead Yet, and 12 other disability rights organizations filed an amicus brief in a case challenging the University of Wisconsin Hospital Center’s alleged practice of counseling families of people with developmental disabilities to withhold care for treatable but potentially...

Read More »

Posted in Disability Rights and Neurodiversity, News, Therapies and Health Care | Tagged Comments Off on ASAN, Disability Rights Orgs File Amicus Brief Challenging Withholding Medical Care Due to Disability

ASAN Testimony to the Neurological Devices Panel of the Medical Devices Advisory Committee of the FDA

| JuliaBascom
ASAN President Ari Ne’eman gave the following testimony urging the ban of aversive-conditioning devices to the Neurological Devices Panel of the Medical Devices Advisory Committee of the Food and Drug Administration (FDA). Good morning. My name is Ari Ne’eman, and I am testifying here in my role as President...

Read More »

Posted in Disability Rights and Neurodiversity, News, Therapies and Health Care | Tagged , , Comments Off on ASAN Testimony to the Neurological Devices Panel of the Medical Devices Advisory Committee of the FDA

Our Lives, Our Health Care: Self Advocates Speaking Out

| JuliaBascom
The Autistic Self Advocacy Network and Office of Developmental Primary Care are pleased to release, “Our Lives, Our Health Care: Self Advocates Speaking Out About Our Experiences with the Medical System.”...

Read More »

Posted in Policy, Publications, Therapies and Health Care | Comments Off on Our Lives, Our Health Care: Self Advocates Speaking Out

The Case for Designating People with I/DD as MUP

| JuliaBascom
There are millions of Americans with disabilities lacking adequate health care because of a lack of primary care providers who are properly trained to treat them. In 2000, Healthy People 2020 cautioned that “as a potentially underserved group, people with disabilities would be expected to experience disadvantages in health...

Read More »

Posted in Policy, Publications, Therapies and Health Care | Tagged , Comments Off on The Case for Designating People with I/DD as MUP

More information