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Category Archives: Therapies and Health Care

Health care disparities need to be remedied and beneficial therapies made more widely available; however, the use of scientifically unproven treatments and those that focus on normalization should be discouraged. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

Organ Transplantation and People with Disabilities: A Toolkit for State Advocates

ASAN Unveils Toolkit for Advocates on Ending Discrimination in Organ Transplantation ASAN has prepared a comprehensive toolkit to empower people with disabilities, their families, and other disability advocates to help combat disability-based discrimination in organ transplantation.  ...

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#StopCombatingMe

Nine years ago, Congress passed the Combating Autism Act (CAA), legislation that focused federal autism research and policy activities on creating a world without autistic people. In 2011, Congress re-authorized this deeply flawed legislation, over the objections of self-advocates and our families. Now, with the CAA set to expire...

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Memorandum on CAA Re-Authorization

Memorandum on CAA Re-Authorization Date: January 26th, 2014 To: Members of Congress and relevant staff From: Ari Ne’eman, President, Autistic Self Advocacy Network Samantha Crane, Director of Public Policy, Autistic Self Advocacy Network   Subject: Upcoming Re-Authorization of the Combating Autism Act   This memorandum articulates the position of...

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ASAN condemns proposal to cut funding for effective mental health advocacy and interventions, expand forced treatment programs

ASAN strongly opposes recently proposed legislation, sponsored by House Representative Tim Murphy (R-PA), which would cut funding for crucial mental health services and advocacy programs while expanding coercive intervention programs. The proposed act reinforces stigmatizing perceptions that people with mental illness are at increased risk for violence and would...

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Policy Brief: Healthcare Transition For Youth With I/DD

ASAN has released a new policy brief on addressing the health care needs of autistic youth as they transition to adulthood. The brief, funded by the WITH Foundation, provides recommendations to ensure that young adults with Intellectual and Developmental Disabilities (I/DD) receive consistent access to quality health care, as...

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Disability Community Letter on FDA Demographic Subgroup Data

November 20, 2013                                    Submitted electronically to www.regulations.gov   Division of Dockets Management (HFA-305) Food and Drug Administration 5630 Fishers Lane, Rm. 1061 Rockville, MD 20852   Re: Docket ID No. FDA-2013-N-0745, Comments on FDASIA Section 907 Report: “Collection, Analysis, and Availability of Demographic Subgroup Data for FDA-Approved Medical Products”...

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Policy Update: November 2013

ASAN has partnered with the LEAD Center to publish Policy Update: Health Care, Employment and Disability, a monthly newsletter focusing on the intersection of disability, employment and health care policy. Policy Update: Health Care, Employment and Disability is intended to provide policymakers, disability service professionals, individuals with disabilities and their families with...

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ASAN Releases Policy Brief on Organ Transplant Discrimination

Twenty-three years after the passage of the Americans with Disabilities Act, people with disabilities continue to face persistent and ongoing discrimination and lack of access in health care settings. In response to numerous reports of discriminatory practices adversely impacting people with disabilities, ASAN has produced an analysis on discrimination...

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ASAN Statement on Fein Study on Autism and “Recovery”

Recently, an article argued that some Autistic children reach what they call the “optimal outcome” of moving out of autism spectrum disorder (ASD). This study greatly concerns ASAN, both in terms of its inherent scientific limitations and the dangerous values framework behind it. Adults who clearly met criteria for...

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APRAIS Drafts Letter on Funding for the Judge Rotenberg Center

The Alliance to Prevent Restraint, Aversive Interventions, and Seclusions (APRAIS), in collaboration with ASAN and other disability advocacy organizations, has drafted the following letter to the Office of Special Education and Rehabilitative Services, as well as the Centers for Medicaid and CHIP Services and Medicare and Medicaid Services.  As...

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