Main Content

Category Archives: Uncategorized

ASAN Comments on Proposed Person-Centered Planning Panel

These comments are available as a PDF here. April 26, 2019 Administration for Community Living (ACL) VIA ELECTRONIC MAIL – pcplanning@qualityforum.org Autistic Self Advocacy Network Re: Proposed Roster for Person-Centered Planning Panel The Autistic Self Advocacy Network appreciates the opportunity to provide comments on the proposed roster for the...

Read More »

Posted in Community Services and Supports, Disability Rights and Neurodiversity, Uncategorized | Tagged , , , , , Comments Off on ASAN Comments on Proposed Person-Centered Planning Panel

Day of Action to #StopTheShock

The Day of Action to #StopTheShock was held on April 24th, 2019, the five-year anniversary of an FDA hearing that found the use of GED shocks at the Judge Rotenberg Center ineffective and harmful. The action included people from all over the US working together to show the FDA...

Read More »

Posted in Blog, Uncategorized | Tagged Comments Off on Day of Action to #StopTheShock

Comments for April 17 IACC Meeting

These comments are available as a PDF here. Thank you for the opportunity to submit written comments. The Autistic Self Advocacy Network, in light of the recent 2019 reintroduction of the Autism CARES Act1Autism CARES Act of 2019, H.R. 1058, S. 427, 116th Cong. (2019). and its annual commemoration...

Read More »

Posted in Uncategorized | Tagged , , Comments Off on Comments for April 17 IACC Meeting

Find out how YOU can #StopTheShock!

On April 24, 2014, the The Food and Drug Administration (FDA), the government organization in the United States that decides what kinds of medical treatments can be used on people, held a hearing that led them to conclude that there is no way to use the GED without significant...

Read More »

Posted in Uncategorized | Comments Off on Find out how YOU can #StopTheShock!

White House Fails Autistic Community, Again

The Autistic Self Advocacy Network is disappointed but not surprised by the White House’s continued participation in Autism Speaks’ “Light It Up Blue” campaign. If the Trump administration truly wanted to support autistic people, they would show us through their actions that we are accepted, rather than taking the...

Read More »

Posted in News, Uncategorized | Tagged , , , , Comments Off on White House Fails Autistic Community, Again

Disability Day of Mourning 2019

Day of Mourning Vigil Remarks – DC Zoe Gross Peter Berns Victoria M. Rodríguez-Roldán Day of Mourning – Virtual Vigil Virtual Vigil General News Coverage Claremont, CA Syracuse, NY Rochester, NY Christiansburg, VA College Park, MD Collegeville, PA Johnson City, TN Moscow, ID...

Read More »

Posted in Blog, Uncategorized | Tagged , Comments Off on Disability Day of Mourning 2019

Remarks from Victoria M. Rodríguez-Roldán at Disability Day of Mourning 2019

Human life has a strange nature to it – when we think of those in our community who were taken from us, we acknowledge its tragedy. But often times we fail to internalize it. Anyone who’s been a parent, or for that matter, anyone who’s had conflicts with their...

Read More »

Posted in Uncategorized | Comments Off on Remarks from Victoria M. Rodríguez-Roldán at Disability Day of Mourning 2019

Remarks from Peter Berns at Disability Day of Mourning 2019

As the CEO of a disability rights organization, as a parent, and as a human being – I regret that we have to gather today.   This is a difficult, but important, day to be a part of. Thank you to the Autistic Self Advocacy Network for holding this annual...

Read More »

Posted in Uncategorized | Comments Off on Remarks from Peter Berns at Disability Day of Mourning 2019

Remarks from Zoe Gross at Disability Day of Mourning 2019

A study came out back in December that got some press this week. The headlines were something like “Autistic children are more likely to be abused.” This isn’t new information – if you work in the field of disability, you should know that disabled people are disproportionately likely to...

Read More »

Posted in Uncategorized | Tagged , Comments Off on Remarks from Zoe Gross at Disability Day of Mourning 2019

Disability Rights Statement On The Deaths At Wanaque Center for Nursing and Rehabilitation

As people with disabilities and loved ones of people with disabilities, as disability rights advocates, and as human beings, we are horrified by the deliberate neglect which led to the deaths of eleven children last fall at the Wanaque Center for Nursing and Rehabilitation, an institution for medically fragile...

Read More »

Posted in Statement, Uncategorized | Comments Off on Disability Rights Statement On The Deaths At Wanaque Center for Nursing and Rehabilitation

More information