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Comments for October 26 IACC Meeting

These comments are available as a PDF here. Thank you for the opportunity to submit written comments. The Autistic Self Advocacy Network (ASAN) continues to be deeply concerned by the allocation of autism research funding.  According to the Office of Autism Research Coordination (OARC), the vast majority of NIH...

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A voice for all: Why I’m fighting to help Autistic students access the form of communication that works best for them.

This March, I filed a complaint with the Department of Justice on behalf of five non-speaking autistic students in Arlington, VA who use letter-boards to communicate (or, as one of these students has dubbed them, the “Arlington Five”). These students are only a few of the many non-speaking autistic...

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ASAN Expresses Concern over New Autism Research Funding Numbers

The Autistic Self Advocacy Network is deeply concerned by numbers released today by the Office of Autism Research Coordination (OARC) showing that autism research funding around services and adult issues has continued to drop from already low levels over the course of the last several years. Based on data from...

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ASAN Statement on CDC’s New Autism Prevalence Data

The Autistic Self Advocacy Network issued the following statement about the Center for Disease Control’s new Autism Spectrum Disorder (ASD) prevalence data on November 19, 2015. The latest CDC numbers reflect better understanding and diagnosis of autism. The data remains in line with studies showing that autistic people are...

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Secretary Burwell Appoints ASAN Director of Public Policy Sam Crane to IACC

October 28, 2015 Today, the Department of Health and Human Services announced its Secretary Sylvia M. Burwell’s appointment of ASAN Director of Public Policy Sam Crane to the Interagency Autism Coordinating Committee (IACC). The IACC is a Federal advisory committee that coordinates research and services programs within the Department...

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ASAN Statement on GOP Primary Debate Comments on Autism and Vaccination

Despite a wealth of scientific evidence debunking any link between autism and vaccinations, tonight’s Republican primary debate featured prominent commentary from a leading candidate repeating inaccurate information suggesting a link. The Autistic Self Advocacy Network is disappointed that long after the science has spoken, politicians and pundits continue to...

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Community Concerns Regarding the Google-Autism Speaks Ten Thousand Genomes Program (AUT10K)

In response to the recent announcement of the new Google-Autism Speaks collaboration to produce, expand and analyze the world’s largest private collection of DNA samples of autistic children and adults, many in the autistic community have expressed significant concerns regarding the initiative. The program, entitled the Autism Speaks Ten...

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ASAN Statement on Autism CARES Act

In response to this week’s introduction of the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act of 2014 (S.2449) and the markup of H.R. 4631, the House equivalent, the Autistic Self Advocacy Network has issued the following statement: ASAN is pleased to note that both the Senate and...

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ACTION ALERT: Call On Congress to Oppose H.R. 4631, the Combating Autism Re-Authorization Act

Tomorrow at 2 PM, the House Energy & Commerce Health Subcommittee will be taking a step to advance H.R. 4631, which would reauthorize the Combating Autism Act. The current version of the bill continues to exclude autistic people from the federal committee that oversees autism research (the Interagency Autism...

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ASAN Letter Expressing Concern re: House Subcommittee Hearing on Autism

Dear Chairman Mica and Ranking Member Connolly: On behalf of the Autistic Self Advocacy Network, the nation’s leading advocacy organization run by and for autistic people, I write to express concern about the upcoming May 20th, 2014 Subcommittee on Government Operations hearing entitled “Examining the Federal Response to Autism...

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