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Author Archives: Ianthe Dempsey

White House Fails Autistic Community, Again

The Autistic Self Advocacy Network is disappointed but not surprised by the White House’s continued participation in Autism Speaks’ “Light It Up Blue” campaign. If the Trump administration truly wanted to support autistic people, they would show us through their actions that we are accepted, rather than taking the...

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Coalition Statement On Updated HCBS Guidance

This statement is available as a PDF here. Today, the Center for Medicare and Medicaid Services (CMS) issued guidance that reaffirms its commitment to implementing the Home and Community Based Settings (HCBS) Rule, including important requirements around the “heightened scrutiny” process for settings that have institutional qualities. First issued...

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Disability Rights Statement On The Deaths At Wanaque Center for Nursing and Rehabilitation

As people with disabilities and loved ones of people with disabilities, as disability rights advocates, and as human beings, we are horrified by the deliberate neglect which led to the deaths of eleven children last fall at the Wanaque Center for Nursing and Rehabilitation, an institution for medically fragile...

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ASAN, 243 Other Orgs Urge FDA to #StopTheShock

This letter is available as a PDF here. March 6th, 2019 Alex M. Azar II Secretary U.S. Department of Health and Human Services Scott GottliebCommissionerFood and Drug Administration John Michael Mulvaney Director Office of Management and Budget Sent via electronic mail Re:  FDA proposed rule banning electrical stimulation devices...

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Congress Must Stop Scapegoating People With Mental Health Disabilities

The House has voted to pass HR 1112, a bill that would close the “Charleston Loophole”, which currently enables some people who have failed criminal background checks to purchase guns. While we would like to applaud this effort to enforce existing common-sense gun laws, an unrelated amendment introduced by...

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ASAN Letter to the House Opposing HR 1112

This letter is available as a PDF here. February 28, 2019 VOTE NO ON H.R. 1112, the Enhanced Background Checks Act of 2019 Dear Representative: On behalf of the American Civil Liberties Union, the Bazelon Center for Mental Health, and the Autistic Self Advocacy Network, we urge members of...

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ASAN Comments on HIPAA Privacy Rule

February 11, 2018 U.S. Department of Health and Human Services Office for Civil Rights Attention: RFI, RIN 0945-AA00Hubert H. Humphrey Building, Room 509F 200 Independence Avenue SWWashington, DC 20201 Re: Department of Health and Human Services, Office for Civil Rights RIN 0945-AA00, Docket HHS-OCR-0945-AA00, “Request for Information on Modifying...

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ASAN Celebrates Legislation To End Subminimum Wage

ASAN applauds Congress for the introduction of the Transformation to Competitive Employment Act. If passed, the Transformation to Competitive Employment Act would end subminimum wage for people with disabilities, and create new opportunities to help us get and keep real jobs with real pay. ASAN is proud to support...

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Sign up to be a Day of Mourning Vigil Site Coordinator

Site coordinators are a vital part of the Disability Day of Mourning. Site coordinators secure space in their communities to hold a vigil, do outreach to community members leading up to the vigil, and document their vigils through pictures or videos to honor those lost to filicide....

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