Accessibility
Become a member
Make a donation
Get our newsletter
Stay Connected
-
Category Archives: Research and Data Collection
ASAN supports research that focuses on improving the daily lives of Autistic people, conducted with respect for privacy and the rights of the individual. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.
Transcript and Video of Julia Bascom’s Keynote at Drexel University
Nothing About Us Without Us: Autistic People Shaping Policy About Our Lives Hi, thank you so much for having me, and thank you Michael for that incredibly powerful introduction. Like Michael said, my name is Julia Bascom, and I’m the Executive Director for the Autistic Self Advocacy Network. We’re...
Posted in Autistic Community and Allies, Events, Research and Data Collection
|
Tagged blog, julia bascom, Drexel
Comments Off on Transcript and Video of Julia Bascom’s Keynote at Drexel University
ASAN Comments on the Clinical Use of Human Germline Genome Editing
These comments are available as a PDF here. 1. Which diseases and conditions, if any, do you see as appropriate for human germline genome editing? Thank you for the opportunity to provide evidence and commentary to the International Commission on the Clinical Use of Human Germline Genome Editing. The...
Posted in Research and Data Collection
|
Tagged comments, crispr, germline genome editing, genome editing
Comments Off on ASAN Comments on the Clinical Use of Human Germline Genome Editing
ASAN Statement on 2018 CDC Prevalence Data
Today, the Centers for Disease Control released the Autism and Developmental Disabilities Monitoring (ADDM) Network report, which estimates the prevalence of autism in certain areas. The results indicate that better recognition of autism, and an encouraging reduction of racial and gender disparities in diagnosis, have caused rates of diagnosis...
Posted in Research and Data Collection, News, Statement
|
Tagged research, statement, CDC, nhis, national health interview survey, centers for disease control, prevalence, autism, autism prevalence
Comments Off on ASAN Statement on 2018 CDC Prevalence Data
Comments for October 26 IACC Meeting
These comments are available as a PDF here. Thank you for the opportunity to submit written comments. The Autistic Self Advocacy Network (ASAN) continues to be deeply concerned by the allocation of autism research funding. According to the Office of Autism Research Coordination (OARC), the vast majority of NIH...
Posted in Research and Data Collection, News, Policy
|
Tagged IACC, research, comment, comments, autism research funding, oarc, office of autism research coordination, NIH
Comments Off on Comments for October 26 IACC Meeting
ASAN Expresses Concern over New Autism Research Funding Numbers
| admin
The Autistic Self Advocacy Network is deeply concerned by numbers released today by the Office of Autism Research Coordination (OARC) showing that autism research funding around services and adult issues has continued to drop from already low levels over the course of the last several years. Based on data from...
Posted in Research and Data Collection, Policy
|
Tagged research, self advocacy, supports
Comments Off on ASAN Expresses Concern over New Autism Research Funding Numbers
ASAN Statement on CDC’s New Autism Prevalence Data
The Autistic Self Advocacy Network issued the following statement about the Center for Disease Control’s new Autism Spectrum Disorder (ASD) prevalence data on November 19, 2015. The latest CDC numbers reflect better understanding and diagnosis of autism. The data remains in line with studies showing that autistic people are...
Posted in Research and Data Collection, News
|
Tagged research, diagnosis
Comments Off on ASAN Statement on CDC’s New Autism Prevalence Data
ASAN Releases New Resource On Medicaid Coverage for Autism Services
ASAN has released a new resource for its toolkit on health coverage for autism-related services. The resource, which is aimed at Medicaid plan administrators, will help plan administrators develop and expand coverage for autism services such as communication supports, occupational therapy, and speech therapy. ASAN released a resource on...
Posted in Community Services and Supports, Research and Data Collection, Therapies and Health Care, News, Publications, Policy
|
Tagged health care, Medicaid, services, supports, therapies
Comments Off on ASAN Releases New Resource On Medicaid Coverage for Autism Services
Secretary Burwell Appoints ASAN Director of Public Policy Sam Crane to IACC
October 28, 2015 Today, the Department of Health and Human Services announced its Secretary Sylvia M. Burwell’s appointment of ASAN Director of Public Policy Sam Crane to the Interagency Autism Coordinating Committee (IACC). The IACC is a Federal advisory committee that coordinates research and services programs within the Department...
Posted in Community Services and Supports, Research and Data Collection, Self Advocacy and Representation, ASAN in the News, Policy
|
Tagged representation, research, self advocacy, policy
Comments Off on Secretary Burwell Appoints ASAN Director of Public Policy Sam Crane to IACC
ASAN Statement on GOP Primary Debate Comments on Autism and Vaccination
| admin
Despite a wealth of scientific evidence debunking any link between autism and vaccinations, tonight’s Republican primary debate featured prominent commentary from a leading candidate repeating inaccurate information suggesting a link. The Autistic Self Advocacy Network is disappointed that long after the science has spoken, politicians and pundits continue to...
Posted in Disability Rights and Neurodiversity, Research and Data Collection, Self Advocacy and Representation, Press, Blog
|
Tagged ignorance, research
Comments Off on ASAN Statement on GOP Primary Debate Comments on Autism and Vaccination
Autism Research: Nothing About Us, Without Us!
Read More »