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Category Archives: Self Advocacy and Representation

ASAN seeks to ensure meaningful involvement of Autistic self-advocates in making policy at all levels. Other category archives, along with past entries sorted by date and tag, can be accessed via the sitemap.

Secretary Burwell Appoints ASAN Director of Public Policy Sam Crane to IACC

October 28, 2015 Today, the Department of Health and Human Services announced its Secretary Sylvia M. Burwell’s appointment of ASAN Director of Public Policy Sam Crane to the Interagency Autism Coordinating Committee (IACC). The IACC is a Federal advisory committee that coordinates research and services programs within the Department...

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ASAN Statement on GOP Primary Debate Comments on Autism and Vaccination

Despite a wealth of scientific evidence debunking any link between autism and vaccinations, tonight’s Republican primary debate featured prominent commentary from a leading candidate repeating inaccurate information suggesting a link. The Autistic Self Advocacy Network is disappointed that long after the science has spoken, politicians and pundits continue to...

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ASAN Comment on Proposed Managed Care Rule

This letter is available as a PDF here and a Word document here.  On behalf of the Autistic Self Advocacy Network, I write to comment on the Medicaid and CHIP Managed Care Proposed Rule CMS-2390-P. The Autistic Self Advocacy Network is the leading national advocacy organization run by and...

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Announcing the ASAN Autistic Scholars Fellowship

In honor of the 25th Anniversary of the Americans with Disabilities Act, the Autistic Self Advocacy Network (ASAN) is very pleased to announce the beginning of a new college scholarship program for autistic students, the Autistic Scholars Fellowship. The ASAN Autistic Scholars Fellowship program, a new ASAN project to advance campus...

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Autistic Pride Day 2015: A Message to the Autistic Community

Today is Autistic Pride Day. For ten years, our community has come together on June 18th to celebrate who we are and affirm our right to build a culture and community of our own. When Autistic Pride Day first began, it was the first in what would become a...

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Statement on CDC Autism Monitoring Efforts

On April 22nd, 2015, the Autistic Self Advocacy Network issued the following statement regarding the CDC’s recent announcement as to the expansion of the Autism and Developmental Disabilities Monitoring Network (ADDM). The Autistic Self Advocacy Network is concerned that the recently announced expansion of data collection and surveillance by...

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ASAN Statement on New Jersey Assisted Suicide Bill Hearing

Despite leading disability rights organizations’ long history of opposition to legalization of assisted suicide, the New Jersey Senate Health, Human Services and Senior Citizens Committee held a hearing yesterday on the state’s proposed assisted suicide bill without inviting any representatives of the disability community as witnesses. People with disabilities,...

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ASAN Comment on California’s HCBS Transition Plan

Department of Health Care Services Long-Term Care Division, STP comments 1501 Capitol Avenue, MS 4503 PO Box 997437 Sacramento, CA 95899-7437 VIA EMAIL: STP@dhcs.ca.gov   Dear Sir or Madam: The Autistic Self Advocacy Network (ASAN) appreciates the opportunity to submit the following comments on California’s statewide home and community-based...

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ASAN Applauds Congressional Letter Urging Self-Advocate Inclusion

FOR IMMEDIATE RELEASE Autistic Self Advocacy Network applauds letter from Congressional champions urging increased representation of autistic adults in Autism CARES Act funded programs. WASHINGTON, D.C.—The Autistic Self Advocacy Network applauded five leading congressional champions for autism services this morning for authoring a letter sent yesterday to the Department...

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ACTION ALERT: Will Your Member of Congress Support Autistic People?

Dear friends, We need your help. This summer, President Obama signed into law the Autism CARES Act, replacing the Combating Autism Act and giving us an opportunity to turn over a new leaf in federal autism policy. But we need more than just a change in name – we...

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