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Comments for October 13-14th IACC Meeting

These comments are available as a PDF here. Thank you for the opportunity to submit written comments on the IACC’s public meeting on October 13th and 14th, 2021. In our prior comments in July 2021, ASAN emphasized the importance of using the reconvening of the IACC as an opportunity...

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Autism Research: Nothing About Us, Without Us!

Today, the new membership of the Interagency Autism Coordinating Committee (IACC) was announced. The IACC is a committee that advises the federal government on autism issues and oversees federal autism research spending. Since its creation, ASAN has called for greater self-advocate representation on the IACC, and urged the IACC...

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Comments for July 21-22nd IACC Meeting

These comments are available as a PDF here. Thank you for the opportunity to submit written comments. The Autistic Self Advocacy Network (ASAN) is pleased that, after an absence of 2020 meetings due to the coronavirus pandemic, the Interagency Autism Coordinating Committee (IACC) will resume its efforts to ensure that...

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ASAN Comments On CMS HCBS Recommended Measure Set

This letter is available as a PDF here. November 18, 2020Centers for Medicare and Medicaid Services (CMS)7500 Security BoulevardBaltimore, MD 21244 Submitted electronically to: HCBSMeasuresRFI@cms.hhs.gov Autistic Self Advocacy Network Regarding Request for Information: Recommended Measure Set for Medicaid-Funded Home and Community-Based Services (HCBS) The Autistic Self Advocacy Network (ASAN)...

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ASAN Comments on DOT’s Proposed Rule on Service Animals and Air Travel

These comments are available as a PDF here. April 6, 2020 Docket Management Facility U.S. Department of Transportation 1200 New Jersey Ave. SE, West Building Ground Floor, Room W12–140 Washington, DC 20590–0001 ASAN Comments Re: “Traveling by Air with Service Animals,” Docket No. DOT–OST–2018–0068, RIN No. 2105–AE63 The Autistic...

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ASAN Comments on the Clinical Use of Human Germline Genome Editing

These comments are available as a PDF here. 1. Which diseases and conditions, if any, do you see as appropriate for human germline genome editing? Thank you for the opportunity to provide evidence and commentary to the International Commission on the Clinical Use of Human Germline Genome Editing. The...

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ACTION ALERT: We have until June 21st to speak up for equal pay

UPDATE: The comment period has been extended to June 21st! We now have more time to combat the subminimum wage. Read the action alert below for more details on how to do so. For the next two weeks, we have an opportunity to fight back against subminimum wage. The...

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Comments for April 17 IACC Meeting

These comments are available as a PDF here. Thank you for the opportunity to submit written comments. The Autistic Self Advocacy Network, in light of the recent 2019 reintroduction of the Autism CARES Act1Autism CARES Act of 2019, H.R. 1058, S. 427, 116th Cong. (2019). and its annual commemoration...

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ASAN Comments on HIPAA Privacy Rule

February 11, 2018 U.S. Department of Health and Human Services Office for Civil Rights Attention: RFI, RIN 0945-AA00Hubert H. Humphrey Building, Room 509F 200 Independence Avenue SWWashington, DC 20201 Re: Department of Health and Human Services, Office for Civil Rights RIN 0945-AA00, Docket HHS-OCR-0945-AA00, “Request for Information on Modifying...

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Comments for October 26 IACC Meeting

These comments are available as a PDF here. Thank you for the opportunity to submit written comments. The Autistic Self Advocacy Network (ASAN) continues to be deeply concerned by the allocation of autism research funding.  According to the Office of Autism Research Coordination (OARC), the vast majority of NIH...

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