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Tag Archives: IACC

Comments for October 26 IACC Meeting

These comments are available as a PDF here. Thank you for the opportunity to submit written comments. The Autistic Self Advocacy Network (ASAN) continues to be deeply concerned by the allocation of autism research funding.  According to the Office of Autism Research Coordination (OARC), the vast majority of NIH...

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ACTION ALERT: Tell HHS to Stop “Creative Accounting” with Autism Research

On July 10th, the federal government’s Office of Autism Research Coordination (OARC) released a new report analyzing the distribution of autism research dollars in 2010. This report – entitled the IACC ASD Research Portfolio – is an annual responsibility of the federal government under Public Law 112-32. At first...

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ASAN expresses concern regarding new HHS report on autism research

FOR IMMEDIATE RELEASE: ASAN expresses concern regarding new HHS report on autism research New report uses “creative accounting” to reflect increase in services-research; confirms persistent under-representation of adult needs Washington, DC – July, 10th, 2012 – This morning, the Office of Autism Research Coordination (OARC) within the federal Department...

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Comments at April 30, 2010 IACC Meeting

Those researchers who work in close consultation with, and call on the expertise of, those of us living on the autism spectrum, in areas of development, interpretation, implementation, and evaluation, are the researchers who will be most likely to make advances that will directly impact the lives of autistic...

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Secretary Sebelius Appoints ASAN President Ari Ne’eman to IACC

The Autistic Self Advocacy Network applauds HHS Secretary Kathleen Sebelius' appointment of ASAN President Ari Ne'eman to the Interagency Autism Coordinating Committee (IACC), a Federal advisory committee that coordinates all efforts within the Department of Health and Human Services (HHS) concerning autism....

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Comments at November 10, 2009 IACC Meeting

The use of the term, and concept of “severity,” is questionable for several reasons. First, “severity” is often contextual, over both time and other things like situation and location. What is being looked at when using the “severity” criterion is how “observable” the autistic characteristic is. Whether or not...

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Comments at October 23, 2009 IACC Meeting

Information about Services Needed: Research into causes, biomarkers, prevention, etc. will not help people who are alive today and need evidence-based information about services and supports. Recent research and initiatives in the United Kingdom can provide a model for services-oriented research and also research into adult issues....

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Comments at May 4, 2009 IACC Meeting

Augmentative and Alternative Communication: Since communication difficulties are experienced by many, if not most, people on the autism spectrum, funding research in this area should be a high priority. Advances in communication technology, and the development of AAC options that are affordable, will have a practical application to the...

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Comments at February 4, 2009 IACC Meeting

Shift in Focus Recommended: Research should address the domains measured by the World Health Organization Quality of Life Instrument. The research agenda should respect the wishes of autistic individuals and their families, many of whom have written in response to Requests for Information....

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