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Category Archives: Policy

ASAN Comments On CMS HCBS Recommended Measure Set

This letter is available as a PDF here. November 18, 2020Centers for Medicare and Medicaid Services (CMS)7500 Security BoulevardBaltimore, MD 21244 Submitted electronically to: HCBSMeasuresRFI@cms.hhs.gov Autistic Self Advocacy Network Regarding Request for Information: Recommended Measure Set for Medicaid-Funded Home and Community-Based Services (HCBS) The Autistic Self Advocacy Network (ASAN)...

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ASAN, Partners Release New Guidelines On Support In Health Settings

The Americans with Disabilities Act (ADA) says that we have the right to reasonable accommodations in health settings. That can include the right to a supporter. But in response to the current COVID-19 crisis, many hospitals and other health settings have developed restrictive visitor policies. Many of these policies...

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ASAN Welcomes Ban of Electric Shock Torture

Today, the Food and Drug Administration released their final ban on the electric skin shock devices used to torture children and adults with disabilities at the Judge Rotenberg Center. The rule will go into effect in 30 days. The JRC will have 180 days to transition people currently subject...

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ASAN Opposes the RESPONSE Act

ASAN condemns the introduction of the RESPONSE Act in the Senate. While this bill frames itself as an attempt to prevent gun violence, in reality, this legislation does not address gun violence at all. Instead, it yet again scapegoats people with mental health disabilities. It is impossible to address...

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ASAN Praises House Passage of Raise the Wage Act

The Autistic Self Advocacy Network applauds the passage of the Raise the Wage Act in the House of Representatives. This bill would raise the federal minimum wage to $15 per hour and end the discriminatory practice of legally paying people with disabilities less than minimum wage. ASAN supports legislation...

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Letter to NJ Governor on Deaths at Wanaque Center

Governor Phil Murphy125 W State StTrenton, NJ 08608 cc: Shereef Elnahal, M.D., M.B.A.CommissionerDepartment of HealthP. O. Box 360 Trenton, NJ 08625-0360 cc: Carole Johnson, CommissionerNew Jersey Department of Human Services222 S Warren St, Trenton, NJ 08608 Dear Governor Murphy, We are writing you regarding the state of New Jersey’s...

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ASAN Letter to the House Opposing HR 1112

This letter is available as a PDF here. February 28, 2019 VOTE NO ON H.R. 1112, the Enhanced Background Checks Act of 2019 Dear Representative: On behalf of the American Civil Liberties Union, the Bazelon Center for Mental Health, and the Autistic Self Advocacy Network, we urge members of...

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ASAN Comments on HIPAA Privacy Rule

February 11, 2018 U.S. Department of Health and Human Services Office for Civil Rights Attention: RFI, RIN 0945-AA00Hubert H. Humphrey Building, Room 509F 200 Independence Avenue SWWashington, DC 20201 Re: Department of Health and Human Services, Office for Civil Rights RIN 0945-AA00, Docket HHS-OCR-0945-AA00, “Request for Information on Modifying...

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ASAN Comments on Proposed Public Charge Rule

You can download our comments as a PDF here. December 10, 2018 Samantha DeshommesChief, Regulatory Coordination Division, Office of Policy and StrategyU.S. Citizenship and Immigration ServicesDepartment of Homeland Security20 Massachusetts Avenue NW, Washington, DC 20529-2140 Re: DHS Docket No. USCIS-2010-0012, Inadmissibility on Public Charge Grounds (published October 10, 2018;...

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ASAN Comments Opposing Family Detention

You can download our comments as a PDF here. November 6th, 2018 Debbie Seguin, Assistant Director, Office of Policy, U.S. Immigration and Customs Enforcement Department of Homeland Security 500 12th Street SW Washington, DC 20536 Re: DHS Docket No. ICEB-2018-0002, Apprehension, Processing, Care, and Custody of Alien Minors and...

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