Changes Needed in Autism Registry Proposal: The Division of Family Health Services has proposed new rules and amendments at N.J.A.C. 8:20 to establish a birth defects registry, which would include an autism registry and a severe neonatal jaundice registry. The Autistic Self Advocacy Network has several concerns about the autism registry proposal.
ASAN President Ari Ne’eman and Columbia University Professor Alicia A. Broderick co-authored “Autism as metaphor: narrative and counter-narrative,” which was published in a special issue of The International…
The IACC’s mandate is broader than scientific research. Access to services and supports, safety improvements, and research across the lifespan are significant issues.
ASAN’s Scott Michael Robertson was among several autistic adults featured in Second Look: Adults With Autism: Autism Affects Every Person Differently, a 17-minute video produced by…
The filming of a national public service announcement about autism jointly produced by the Dan Marino Foundation and the Autistic Self Advocacy Network was reported on WTVF-TV in Nashville,…
Expanding Focus on Whole Individual: While NIMH and the IACC are obviously not first and foremost service-delivery organizations, the goal of all scientific research into any disabling conditions should ultimately be the application of that research to real-life situations in ways that directly benefit the subjects of that research.
ASAN’s Paula C. Durbin-Westby delivered a talk “Autism, Literature, and Popular Culture: The Curious Coincidence of Autism Metaphors Across Diverse Genres” to the Honors Program…
Exploitative and Misleading Billboard Withdrawn: A billboard created by PETA misinformed the public about the autism spectrum by falsely implying that milk consumption was the cause of autism. Our community came together to communicate the need for a swift withdrawal of this ill-informed piece of advertising.
The Autistic Self Advocacy Network and several other disability rights organizations submitted a joint comment calling for the inclusion of autistic adults in all aspects of IACC’s decision-making process, research topic selection, research design and research implementation.
ASAN President Ari Ne’eman appeared in a Salon.com article on Sept. 18, 2008, about the use of demeaning language in the movie Tropic Thunder.
ASAN President Ari Ne’eman appeared in the story In Advocacy Realm, Specific Disabilities Gain in Prominence in the Sept. 17, 2008 issue of Education Week magazine.
Input from Autistic Adults Needed: Public comments on autism services and support can help to shape the priorities of the Interagency Autism Coordinating Committee (IACC) in allocating research funds. ASAN has prepared background information and talking points for those who wish to comment.
