Research

Research should include autistic people and benefit us.

We need more research that helps autistic people live our lives. But most autism research focuses on trying to find out what causes autism, in order to prevent or “cure” it. This is not research that autistic people want. It doesn’t help autistic people that are here now. More money needs to be given to research that helps us, like research on communication, community living, education, and health care for autistic people. 

Community Based Participatory Research

ASAN supports Community Based Participatory Research (CBPR). This means that members of the community help make the research projects that are about us. Researchers and the autistic community can work together to help make our lives better. To learn more about CBPR, you can visit the website of the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE, http://aaspire.org), which ASAN is proud to be a part of.

Interagency Autism Coordinating Committee

IACC, short for the Interagency Autism Coordinating Committee, provides feedback on where federal spending on autism research should be spent. When public comments are open, we provide an action alert that explains how you can leave a public comment. You can view our current action alerts here.

Statement on Genetic Research

As genetic research continues to develop, autistic people must have our say in how it should be used, and not used. ASAN is against any research that tries to find a cure for autism. We don’t think that autism can or should be cured. Instead of wasting time and money on something that isn’t possible and that autistic people don’t want, we should focus on supporting autistic people to live good lives.

Scientists should never use genetic research for eugenics. Any autism research about genetics must be lead and controlled by the autistic community. It is important to disabled people and other marginalized people that scientists never use genetic research for eugenics. We think there should be more protections against discrimination
based on genetics.

For more information, you can read our full statement on genetic research here.

Resources

Latest Posts

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Statement on Genetic Research & Autism

For Autism Acceptance Month 2022, ASAN is releasing a statement on genetic research and autism. Written in plain language, this statement gives background information on autism research, lays out ASAN’s concerns about genetic research as applied to autism, and recommends safeguards to make sure that any genetic research on autism is done by and for…

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Functioning Labels Harm Autistic People

On December 6th, a group of autism researchers commissioned by The Lancet released a report on the future of autism services and research. This report primarily deals with the need for better services and research for autistic people, including the need for individualized services, and research that prioritizes quality of life. Unfortunately, media coverage of…

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