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Author Archives: Ianthe Dempsey

ASAN Comments on the Clinical Use of Human Germline Genome Editing

These comments are available as a PDF here. 1. Which diseases and conditions, if any, do you see as appropriate for human germline genome editing? Thank you for the opportunity to provide evidence and commentary to the International Commission on the Clinical Use of Human Germline Genome Editing. The...

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ASAN Joins Restraint and Seclusion Lawsuit

This press release is available as a PDF here. October 8, 2019 Contact: Regina Kline, Esq. rkline@browngold.com Washington, DC – A lawsuit filed today alleges that students with disabilities in Fairfax County Public Schools (FCPS) experience unjustified discrimination, psychological trauma, and physical harm from the widespread and improper use...

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Register for ASAN’s 2019 Gala! 🎊

Join us for a special celebration and fundraising event on Wednesday, November 13. Dinner and dessert will be served and a reception will precede dinner. Proceeds will support our advocacy work and programs for the coming year, and allow us to continue working to empower disabled people across the...

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How are YOU taking action this TCEA Tuesday? ✊

When she was young, Laura worked in a sheltered workshop. She was paid eight cents an hour doing contract work. Nicki faced discrimination at work. She was told that asking for accommodations that would let her work with everyone else were “a waste of taxpayer money”. They both now...

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ASAN Has Ended Partnership With Sesame Street

The Autistic Self Advocacy Network condemns Sesame Street’s decision to further stigma against autistic children and adults in their new Public Service Announcements.  For several years, ASAN consulted with Sesame Street on their See Amazing project and the development of their autistic character, Julia. Until this summer, the content...

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ASAN Praises House Passage of Raise the Wage Act

The Autistic Self Advocacy Network applauds the passage of the Raise the Wage Act in the House of Representatives. This bill would raise the federal minimum wage to $15 per hour and end the discriminatory practice of legally paying people with disabilities less than minimum wage. ASAN supports legislation...

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We’re launching proxy calling – and we need YOUR help!

ASAN is proud to announce the first test of our new proxy calling system! Calling our elected officials’ offices is unfortunately one of the most effective forms of legislative advocacy — and that presents a major access barrier for people who can’t use a phone. We’re trying out a...

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ASAN Letters on NQF Person-Centered Planning Panel

Letter to ACL Administrator Download this letter as a PDF here. Dear Assistant Secretary Robertson, We are writing to you again in follow up to a coalition letter sent to you on May 2nd, 2019, as well as public comments submitted by ASAN on April 29th, 2019, regarding the...

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Letter to NJ Governor on Deaths at Wanaque Center

Governor Phil Murphy125 W State StTrenton, NJ 08608 cc: Shereef Elnahal, M.D., M.B.A.CommissionerDepartment of HealthP. O. Box 360 Trenton, NJ 08625-0360 cc: Carole Johnson, CommissionerNew Jersey Department of Human Services222 S Warren St, Trenton, NJ 08608 Dear Governor Murphy, We are writing you regarding the state of New Jersey’s...

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NEW Toolkits on Community Living & Accessibility!

In May of 2018, the Community Living Policy Center (CLPC) asked ASAN to hold a self-advocate summit about community living. At the summit, autistic people talk about what living in the community means to us, and how we can help more people live in the community....

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