It can be hard for autistic people to get the health care we need. Some obstacles to getting care are not having insurance, having insurance that doesn’t cover what we need, or not being near health care providers. The Affordable Care Act (ACA) made it much easier for autistic people to get good insurance. It is important to protect the progress we made. There is still so much more to do to make sure that everyone who needs health care can get it. Efforts to make health care better need to focus on strengthening, improving, or going beyond the ACA.
Read more about health care, key laws, and our work on health care rights here.
Resources
COVID-19
- COVID-19 Case Tracker
- COVID-19 Plain Language Resources Plain Language
Toolkits
- Roadmap to Transition: A Handbook for Autistic Youth Transitioning to Adulthood Plain Language
- A Self Advocate’s Guide to Managed Long-Term Services and Supports Plain Language Easy Read
- A Self-Advocate’s Guide to Medicaid Plain Language Easy Read
- Affordable Care Act Toolkit for Self-Advocates Plain Language Easy Read
- Toolkit for Advocates on Ending Discrimination in Organ Transplantation
- Toolkit for Advocates on Health Care and the Transition to Adulthood
- Real Talk: Improving Quality of Sexual Health Care for Patients with Disabilities
Policy Briefs & Reports
- First-Hand Perspectives on Behavioral Interventions for Autistic People and People with other Developmental Disabilities
- The Affordable Care Act and the I/DD Community: An Overview of the Law and Advocacy Priorities Going Forward
- The Case for Designating People with Intellectual and Developmental Disabilities as a Medically Underserved Population
- Policy Analysis for the revised Autism Criteria in the DSM-5.
- Organ Transplantation and People with I/DD: A Review of Research, Policy and Next Steps
- Our Lives, Our Health Care: Self Advocates Speaking Out
Beyond Coercion and Institutionalization: People with Intellectual and Developmental Disabilities and the Need for Improved Behavior Support Services
What people call “behavior supports” covers a wide variety of services, and not all of these services are truly helpful to people with intellectual and developmental disabilities. How can we move away from services that try to change people’s behavior without understanding what people are thinking and feeling? What would it take to create behavior…
🪐ASAN May Update 🪐
ASAN May Newsletter Dear friend, This month saw a total solar eclipse, some of the strongest auroras in centuries, and plenty of policy work fighting for our community’s rights! Check out what we’ve been working on this month and the opportunities ahead! This month, we had the opportunity to #StopTheShock at the Judge Rotenberg Center…
🦖ASAN April Update🦖
ASAN April Newsletter Dear friend, This month we celebrated our community — as well as our love of dinosaurs — and continued to fight for our rights. Check out what we’ve been working on this month and what work is still to come! We were excited to begin Autism Acceptance Month seeing the White House…