It can be hard for autistic people to get the health care we need. Some obstacles to getting care are not having insurance, having insurance that doesn’t cover what we need, or not being near health care providers. The Affordable Care Act (ACA) made it much easier for autistic people to get good insurance. It is important to protect the progress we made. There is still so much more to do to make sure that everyone who needs health care can get it. Efforts to make health care better need to focus on strengthening, improving, or going beyond the ACA.
Read more about health care, key laws, and our work on health care rights here.
Resources
COVID-19
- COVID-19 Case Tracker
- COVID-19 Plain Language Resources Plain Language
Toolkits
- Roadmap to Transition: A Handbook for Autistic Youth Transitioning to Adulthood Plain Language
- A Self Advocate’s Guide to Managed Long-Term Services and Supports Plain Language Easy Read
- A Self-Advocate’s Guide to Medicaid Plain Language Easy Read
- Affordable Care Act Toolkit for Self-Advocates Plain Language Easy Read
- Toolkit for Advocates on Ending Discrimination in Organ Transplantation
- Toolkit for Advocates on Health Care and the Transition to Adulthood
- Real Talk: Improving Quality of Sexual Health Care for Patients with Disabilities
Policy Briefs & Reports
- First-Hand Perspectives on Behavioral Interventions for Autistic People and People with other Developmental Disabilities
- The Affordable Care Act and the I/DD Community: An Overview of the Law and Advocacy Priorities Going Forward
- The Case for Designating People with Intellectual and Developmental Disabilities as a Medically Underserved Population
- Policy Analysis for the revised Autism Criteria in the DSM-5.
- Organ Transplantation and People with I/DD: A Review of Research, Policy and Next Steps
- Our Lives, Our Health Care: Self Advocates Speaking Out
🦖ASAN April Update🦖
ASAN April Newsletter Dear friend, This month we celebrated our community — as well as our love of dinosaurs — and continued to fight for our rights. Check out what we’ve been working on this month and what work is still to come! We were excited to begin Autism Acceptance Month seeing the White House…
Learn About Upcoming, Proposed, and Final Federal Rules for Spring 2024
Final Rules for April 2024 This April, the government finalized a lot of federal rules that matter to our community. Federal rules are made by the executive branch to make sure people and groups follow laws. Some of the rules finalized this month make it easier to get and keep Medicaid, SSI, and other benefits….
ASAN’s Response to the IACC RFI on Co-Occurring Conditions
These comments are available as a PDF here. IACC’s Co-occurring RFI (January / February 2024) We thank the IACC for the opportunity to comment. We would like to note that given the importance of these issues, it is unfortunate that the submission format for this RFI significantly limits respondents’ ability to provide thorough, meaningful comment….